NeuroTalk Support Groups - PwMS Dx ~ Did you have O-bands AT THE TIME OF CONFIRMED DX?

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NeuroTalk Support Groups (https://www.neurotalk.org/)

- Multiple Sclerosis (https://www.neurotalk.org/multiple-sclerosis/)

- - PwMS Dx ~ Did you have O-bands AT THE TIME OF CONFIRMED DX? (https://www.neurotalk.org/multiple-sclerosis/51544-pwms-dx-bands-time-confirmed-dx.html)

tovaxin_lab_rat

08-08-2008 04:43 PM

Quote:

Originally Posted by Gazelle (Post 342084)

:D But I'm thinking "euthanasia," no matter HOW simple a cure, should not be a poll choice.

http://sl.glitter-graphics.net/pub/1...b3rc8vhib9.gif

sassy

08-08-2008 06:24 PM

Quote:

We have often talked about the % of people with MS who have O-bands, and I am wondering how many people here, with a confirmed dx of MS, had the required 2+ O-bands (or were even tested, etc.)?

What do you mean by required 2+ O bands?? Required for what?

lady_express_44

08-08-2008 06:36 PM

Quote:

Originally Posted by sassy (Post 342188)

What do you mean by required 2+ O bands?? Required for what?

You have to have 2 or more O-bands for it to be a positive marker/dx criteria for MS.

Cherie

ewizabeth

08-08-2008 08:25 PM

Maybe this is a bit off topic, but I was just reading the newest issue of the MSQR. It doesn't say that a spinal tap is required for diagnosis, unless the patient appears to have PPMS.

They use MRI studies for diagnosis today. They did say the spinal tap was used with the older Poser criteria along with VEP. So today they only do a spinal tap to rule out PPMS?

It certainly can get complicated. No wonder the average doctor has a hard time diagnosing MS. :confused:

tovaxin_lab_rat

08-08-2008 08:35 PM

According to the Updated McDonald Criteria (2005) a spinal tap is not required for dx under certain circumstances.

http://www.mult-sclerosis.org/DiagnosticCriteria.html

If you have 2 clinical attacks and 2 clinically defined lesions, no further evidence is required.

If you have 2 clinical attacks, 1 lesion, then an MRI is required, OR positive CSF, etc.

This also states that the updated McDonald criteria using the advanced techniques of MRI are intended to replace the Poser criteria and the older Schumacher criteria for dx.

And yes, it does read Positive CSF as additional data for dx PPMS under the McDonald Criteria.

lady_express_44

08-08-2008 08:50 PM

Quote:

Originally Posted by Av8rgirl (Post 342310)

If you have 2 clinical attacks attacks, 1 lesion, then an MRI is required, OR positive CSF, etc.

Thanks for the clarification, Cheryl. Yes, O-bands are not required if everything else pans out nicely . . . it's when it doesn't that they go looking for them.

When people don't have what is needed, the neuro sometimes sends them for a LP to look for O-bands. One is not enough to support a MS dx, in and of itself . . . but two would be more convincing, with either two documented clinical attacks, and/or a MS-type lesion(s) and i.e. one clinical attack, etc.

Cherie

jowen214

08-09-2008 06:25 PM

This was the case in my situation...no lesions showed up on MRIs, I'd had 2 exacerbations...that was it.

Quote:

Originally Posted by lady_express_44 (Post 342324)

weeble

08-10-2008 02:12 AM

No LP needed for my DX.:cool:

kicker

08-10-2008 07:30 AM

I had lesions, O-bands, EVPs, blood tests that ruled everything else out. Easy-peasy DX of MS (for neurologist)

lady_express_44

08-11-2008 11:00 AM

Quote:

Originally Posted by Snoopy (Post 340646)

I was dx'd based on the positive LP, neuro exam and symptoms. One year later I had my second severe exacerbation so that resolved any doubt anyone may have had, including myself.

Snoopy, did they do a MRI of your spine specifically too, around the time of your LP?

Also, how long did it take before lesions did show up?

Cherie

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