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View Poll Results: Did you have O-bands at the time of dx of MS? | ||||||
I was not tested/test results were inconclusive |
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16 | 27.59% | |||
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I did not have O-bands |
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15 | 25.86% | |||
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I had <2 O-bands |
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7 | 12.07% | |||
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I had >2 O-bands (or my doc said the test was positive for O-bands) |
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20 | 34.48% | |||
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I do not know the results of the testing I had for O-bands |
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0 | 0% | |||
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Voters: 58. You may not vote on this poll |
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#21 | |||
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Senior Member
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So can I select one from column A, one from column B, and two from column C? Or should I just pick the one whose name I like the best?
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A Hairy Chicken Is Better Than A Hairy Hand! |
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#22 | |||
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Grand Magnate
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Quote:
![]() Awe, could at least let us all have some fun by posting another poll to come up with the best dx for you . . . please. ![]() Actually, I could narrow it down for you with a prior posting: Quote:
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I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
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#23 | |||
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Grand Magnate
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I had 11 O-bands, but only 1 lesion (in my neck).
I remember the (seemingly) suppressed excitement of the neuro doc and his PA, hoping that I could remember any previous 24+ hour Sx. I finally remembered I'd been to the chiropractor twice with a numb leg about 15 years ago. They practically jumped for joy. That was April 13, 2007. I was jumping for joy it wasn't something much worse/life-threatening.
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Rochelle . . I've lost my mind ... and I don't miss it! LIFE HAS NO REMOTE -- GET UP AND CHANGE IT YOURSELF! |
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"Thanks for this!" says: | Kitty (08-07-2008) |
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#24 | |||
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Kathy |
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#25 | |||
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Magnate
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Cherie, my understanding is that they don't go away with MS... least after hearing my neuro say, "Think of them as the age bands on a tree".
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2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
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"Thanks for this!" says: | Bearygood (08-07-2008), lady_express_44 (08-07-2008) |
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#26 | |||
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Senior Member
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Quote:
![]() ![]() Seriously, I had TONS of bloodwork when I first got sick. Nada. Nothing. That is, except for the lovely abnormal LP results. Doc 1 at this facility I'm at now said he thought maybe my first LP wasn't totally done correctly and that's why he ordered another. He also told me to get a ton of bloodwork done--again--too. Nada. The only thing that showed a positive was the ANA but there was another titre done and that tested negative. Chest CT was done to rule out pulmonary lesions, which a lot of MS mimickers have. Nope. Nada on the pulmonary lesions too. I'm alternative dx free right now. Gotta come up with better than that. I'm thinking MS. ![]() As reasonable neuros can differ in their opinions, so do I with those who don't see any where others saw at least one. And radiologists saw NONE, even with a BIG lesion in the CC. Maybe I should just hand them MRI cards and tell 'em to "Go FISH!"
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A Hairy Chicken Is Better Than A Hairy Hand! |
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#27 | |||
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Grand Magnate
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I'll only offer up the lesser of the evils, so we can limit the "disease" to something that is simple to fix.
![]() I still think it's MS, and something messed up with the LP. Time will usually tell-all. Cherie ___________ So far, this poll seems to be panning out similar to one we did several years ago. I think about 50% knew they had O-bands . . . not close to 90% that we read about all the time.
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I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
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"Thanks for this!" says: | Gazelle (08-08-2008) |
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#28 | |||
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Junior Member
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I posted >2, but I had 2 with elevated whatever, but I did not and still do not have lesions showing on MRI. I was diagnosed by findings of my LP and the fact that I had had 2 exacerbations.
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Jennifer 12/05: MS Dx ~~ 1/06-5/06: Avonex ~~ 8/06-9/06: Copaxone ~~ 12/06: Betaseron ~~ 1/07: No DMDs For Now |
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#29 | ||
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Member
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My MS presented atypically, and my lesions were not enough to DX. The LP had enough O-bands to make it conclusive.
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#30 | |||
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Senior Member
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Quote:
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A Hairy Chicken Is Better Than A Hairy Hand! |
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