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PwMS Dx ~ Did you have O-bands AT THE TIME OF CONFIRMED DX?

View Poll Results: Did you have O-bands at the time of dx of MS?
I was not tested/test results were inconclusive 16 27.59%
I was not tested/test results were inconclusive
16 27.59%
I did not have O-bands 15 25.86%
I did not have O-bands
15 25.86%
I had <2 O-bands 7 12.07%
I had <2 O-bands
7 12.07%
I had >2 O-bands (or my doc said the test was positive for O-bands) 20 34.48%
I had >2 O-bands (or my doc said the test was positive for O-bands)
20 34.48%
I do not know the results of the testing I had for O-bands 0 0%
I do not know the results of the testing I had for O-bands
0 0%
Voters: 58. You may not vote on this poll

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Old 08-08-2008, 04:43 PM #31
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Originally Posted by Gazelle View Post
But I'm thinking "euthanasia," no matter HOW simple a cure, should not be a poll choice.

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Old 08-08-2008, 06:24 PM #32
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We have often talked about the % of people with MS who have O-bands, and I am wondering how many people here, with a confirmed dx of MS, had the required 2+ O-bands (or were even tested, etc.)?
What do you mean by required 2+ O bands?? Required for what?
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Old 08-08-2008, 06:36 PM #33
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Quote:
Originally Posted by sassy View Post
What do you mean by required 2+ O bands?? Required for what?
You have to have 2 or more O-bands for it to be a positive marker/dx criteria for MS.

Cherie
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Old 08-08-2008, 08:25 PM #34
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Maybe this is a bit off topic, but I was just reading the newest issue of the MSQR. It doesn't say that a spinal tap is required for diagnosis, unless the patient appears to have PPMS.

They use MRI studies for diagnosis today. They did say the spinal tap was used with the older Poser criteria along with VEP. So today they only do a spinal tap to rule out PPMS?

It certainly can get complicated. No wonder the average doctor has a hard time diagnosing MS.
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Old 08-08-2008, 08:35 PM #35
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According to the Updated McDonald Criteria (2005) a spinal tap is not required for dx under certain circumstances.

http://www.mult-sclerosis.org/DiagnosticCriteria.html

If you have 2 clinical attacks and 2 clinically defined lesions, no further evidence is required.

If you have 2 clinical attacks, 1 lesion, then an MRI is required, OR positive CSF, etc.

This also states that the updated McDonald criteria using the advanced techniques of MRI are intended to replace the Poser criteria and the older Schumacher criteria for dx.

And yes, it does read Positive CSF as additional data for dx PPMS under the McDonald Criteria.
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Old 08-08-2008, 08:50 PM #36
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Quote:
Originally Posted by Av8rgirl View Post
If you have 2 clinical attacks attacks, 1 lesion, then an MRI is required, OR positive CSF, etc.
Thanks for the clarification, Cheryl. Yes, O-bands are not required if everything else pans out nicely . . . it's when it doesn't that they go looking for them.

When people don't have what is needed, the neuro sometimes sends them for a LP to look for O-bands. One is not enough to support a MS dx, in and of itself . . . but two would be more convincing, with either two documented clinical attacks, and/or a MS-type lesion(s) and i.e. one clinical attack, etc.

Cherie
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Old 08-09-2008, 06:25 PM #37
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This was the case in my situation...no lesions showed up on MRIs, I'd had 2 exacerbations...that was it.
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Originally Posted by lady_express_44 View Post
Thanks for the clarification, Cheryl. Yes, O-bands are not required if everything else pans out nicely . . . it's when it doesn't that they go looking for them.

When people don't have what is needed, the neuro sometimes sends them for a LP to look for O-bands. One is not enough to support a MS dx, in and of itself . . . but two would be more convincing, with either two documented clinical attacks, and/or a MS-type lesion(s) and i.e. one clinical attack, etc.

Cherie
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Old 08-10-2008, 02:12 AM #38
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No LP needed for my DX.
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Old 08-10-2008, 07:30 AM #39
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I had lesions, O-bands, EVPs, blood tests that ruled everything else out. Easy-peasy DX of MS (for neurologist)
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Old 08-11-2008, 11:00 AM #40
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Quote:
Originally Posted by Snoopy View Post
I was dx'd based on the positive LP, neuro exam and symptoms. One year later I had my second severe exacerbation so that resolved any doubt anyone may have had, including myself.
Snoopy, did they do a MRI of your spine specifically too, around the time of your LP?

Also, how long did it take before lesions did show up?

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