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View Poll Results: Did you have O-bands at the time of dx of MS?
I was not tested/test results were inconclusive 16 27.59%
I was not tested/test results were inconclusive
16 27.59%
I did not have O-bands 15 25.86%
I did not have O-bands
15 25.86%
I had <2 O-bands 7 12.07%
I had <2 O-bands
7 12.07%
I had >2 O-bands (or my doc said the test was positive for O-bands) 20 34.48%
I had >2 O-bands (or my doc said the test was positive for O-bands)
20 34.48%
I do not know the results of the testing I had for O-bands 0 0%
I do not know the results of the testing I had for O-bands
0 0%
Voters: 58. You may not vote on this poll

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Old 08-06-2008, 08:22 PM #21
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So can I select one from column A, one from column B, and two from column C? Or should I just pick the one whose name I like the best? (I kinda like the latter method the best.)
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Old 08-06-2008, 08:55 PM #22
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Quote:
Originally Posted by Gazelle View Post
So can I select one from column A, one from column B, and two from column C? Or should I just pick the one whose name I like the best? (I kinda like the latter method the best.)


Awe, could at least let us all have some fun by posting another poll to come up with the best dx for you . . . please.

Actually, I could narrow it down for you with a prior posting:

Quote:
Originally Posted by lady_express_44 View Post
Unless we have an acute Transverse Myelitis attack ... there are only a very few non-MS related diseases that can cause "lesions" in the spine, including; ADEM (Acute disseminated encephalomyelitis), Sarcoidosis, Lyme (Borrelia burgdorferi) and SLE (Lupus). See link:

ALL of those diseases also have O-bands:

http://www.diseasesdatabase.com/resu...ClassSort=True

There are "other" tests that can be done to rule out those diseases, like chest x-rays (for Sarcoidosis), Western Blot (for Lyme), blood tests positive serology with ANA and double-stranded DNA (for Lupus). Sarcoid, Lyme, and ADEM also do not have dissemination in time, which MS has.
Cherie
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Old 08-06-2008, 09:08 PM #23
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I had 11 O-bands, but only 1 lesion (in my neck).

I remember the (seemingly) suppressed excitement of the neuro doc and his PA, hoping that I could remember any previous 24+ hour Sx. I finally remembered I'd been to the chiropractor twice with a numb leg about 15 years ago. They practically jumped for joy.

That was April 13, 2007.

I was jumping for joy it wasn't something much worse/life-threatening.
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Old 08-06-2008, 09:16 PM #24
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I voted - I had > 2 but I actually only had 2 - there was no option for equal to two
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Old 08-06-2008, 10:58 PM #25
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Cherie, my understanding is that they don't go away with MS... least after hearing my neuro say, "Think of them as the age bands on a tree".
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Old 08-07-2008, 05:55 AM #26
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Quote:
Originally Posted by lady_express_44 View Post


Awe, could at least let us all have some fun by posting another poll to come up with the best dx for you . . . please.

Actually, I could narrow it down for you with a prior posting:



Cherie
Wanna post a poll? Go for it! Just be nice.....

Seriously, I had TONS of bloodwork when I first got sick. Nada. Nothing. That is, except for the lovely abnormal LP results.

Doc 1 at this facility I'm at now said he thought maybe my first LP wasn't totally done correctly and that's why he ordered another. He also told me to get a ton of bloodwork done--again--too.

Nada. The only thing that showed a positive was the ANA but there was another titre done and that tested negative.

Chest CT was done to rule out pulmonary lesions, which a lot of MS mimickers have. Nope. Nada on the pulmonary lesions too.

I'm alternative dx free right now. Gotta come up with better than that. I'm thinking MS. And it ain't all in my head---I got a thoracic spine lesion too to consider. It's just getting docs to agree on "hmmm.... I see none" or "Hmmm..... I see one" or "Hmmm..... I see two lesions."

As reasonable neuros can differ in their opinions, so do I with those who don't see any where others saw at least one. And radiologists saw NONE, even with a BIG lesion in the CC.

Maybe I should just hand them MRI cards and tell 'em to "Go FISH!"
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Old 08-07-2008, 10:40 AM #27
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Quote:
Originally Posted by Gazelle View Post
Wanna post a poll? Go for it! Just be nice.....
I'll only offer up the lesser of the evils, so we can limit the "disease" to something that is simple to fix.

I still think it's MS, and something messed up with the LP. Time will usually tell-all.

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So far, this poll seems to be panning out similar to one we did several years ago. I think about 50% knew they had O-bands . . . not close to 90% that we read about all the time.
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Old 08-07-2008, 04:22 PM #28
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I posted >2, but I had 2 with elevated whatever, but I did not and still do not have lesions showing on MRI. I was diagnosed by findings of my LP and the fact that I had had 2 exacerbations.
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Old 08-08-2008, 10:59 AM #29
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My MS presented atypically, and my lesions were not enough to DX. The LP had enough O-bands to make it conclusive.
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Old 08-08-2008, 03:54 PM #30
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Quote:
Originally Posted by lady_express_44 View Post
I'll only offer up the lesser of the evils, so we can limit the "disease" to something that is simple to fix.
But I'm thinking "euthanasia," no matter HOW simple a cure, should not be a poll choice.
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