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#1 | |||
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Elder
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I think you will get about as many different explanations as you will people who have it. I felt like I was being crushed. Couldn't catch my breath and it came as fast as it went. It was like someone has taken a big ace wrap and wrapped it so tight around my mid section and it just wouldn't give. And then sat on my chest. Do a search on this site for MS Hug and you will find several threads about it. This might help. http://ms.about.com/od/signssymptoms/a/ms_hug_pain.htm
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Cheryl Dx: MS 2001 CRPS 2009 “When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford |
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"Thanks for this!" says: | LaPepper (08-11-2008) |
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#2 | |||
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Magnate
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I don't get the sitting on the chest feeling, however I get the 'girdle' sensation of the ace bandage around the waist. More annoying for me than painful.
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2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
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#3 | |||
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Junior Member
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For me the hug feels like a braxton and hicks contraction but without the actual contraction. Drives me nuts when it happens (though it is a very short drive)
Kathy |
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"Thanks for this!" says: | tovaxin_lab_rat (08-11-2008) |
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#4 | |||
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Grand Magnate
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They used to call it the "girdle", and I think that described the sensation better then the "hug". It is like a very wide elastic stretched to the max, wrapped around a person, then released to synch them up tight around the middle.
As per the link Cheryl posted, "It is caused by a lesion on the spinal cord" and "is technically classified as a neuropathic pain called a “paresthesia,” which refers to any abormal sensation". Some "abnormal sensations" we get with MS include: "Paraesthesia describes a number of abnormal sensations just about anywhere in the body. These include tingling, prickling, pins and needles, electrical-type buzzing, burning, skin crawling, itching, partial numbness (like feeling through tent-cloth) and a variety of neuropathic pains." http://www.mult-sclerosis.org/paraesthesia.html When I had the hug, I had ALL of those sensations combined with a feeling like I was swollen. I also had severe sensitivity to touch, as if someone was scrubbing me with a SOS pad when they slightly brushed my skin. I have had a heaviness in the chest too, with "apparent" difficulty breathing, but had a COPD test and all was fine. ![]() I don't know if we really have a satisfactory description of what the "hug" is. What has me a bit stumped about your explanation is that pain relievers do not usually help at all (or very, very little) for neuropathic pain. ![]() If it were me, I'd be considering GERD or something like that instead. Cherie
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I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
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#5 | |||
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Member
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Thanks for replies..I know its hard to explain pain and also I forgot to mention that an echo was done on my pancreas. My PCP was thinking maybe pancreatis. That was normal also. Cherie, I was kinda thinking of GERD also. Again, thanks Ya'll
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God never promised a smooth journey, just a safe landing! |
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#6 | |||
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Grand Magnate
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GERD can feel very, very strong, almost like a heart attack. A lot of us seem to have this condition too. Cherie
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I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
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"Thanks for this!" says: | LaPepper (08-11-2008) |
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