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#1 | |||
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Member
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Can anyone explain what the MS hug feels like. My hubby had to rush me to emergecy room Thursday morning at 2am. I felt like my chest was being crushed...I could not take a deep breath. The Docs ran EKG, Echo Stress test, blood work..all tests came out good. Gave me a shot of Demerol which helped with the pain. Went to my PCP Friday, he got copies from all the tests made at the hospital and went over them with me and said all the tests are ok. This feeling in my chest lasted until Saturday and then left just a quickly as it started. Just wondering if this could be the "hug"?
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God never promised a smooth journey, just a safe landing! |
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#2 | |||
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Elder
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Quote:
I think you will get about as many different explanations as you will people who have it. I felt like I was being crushed. Couldn't catch my breath and it came as fast as it went. It was like someone has taken a big ace wrap and wrapped it so tight around my mid section and it just wouldn't give. And then sat on my chest. Do a search on this site for MS Hug and you will find several threads about it. This might help. http://ms.about.com/od/signssymptoms/a/ms_hug_pain.htm
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Cheryl Dx: MS 2001 CRPS 2009 “When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford |
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"Thanks for this!" says: | LaPepper (08-11-2008) |
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#3 | |||
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Magnate
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I don't get the sitting on the chest feeling, however I get the 'girdle' sensation of the ace bandage around the waist. More annoying for me than painful.
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2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
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#4 | |||
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Junior Member
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For me the hug feels like a braxton and hicks contraction but without the actual contraction. Drives me nuts when it happens (though it is a very short drive)
Kathy |
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"Thanks for this!" says: | tovaxin_lab_rat (08-11-2008) |
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#5 | |||
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Grand Magnate
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They used to call it the "girdle", and I think that described the sensation better then the "hug". It is like a very wide elastic stretched to the max, wrapped around a person, then released to synch them up tight around the middle.
As per the link Cheryl posted, "It is caused by a lesion on the spinal cord" and "is technically classified as a neuropathic pain called a “paresthesia,” which refers to any abormal sensation". Some "abnormal sensations" we get with MS include: "Paraesthesia describes a number of abnormal sensations just about anywhere in the body. These include tingling, prickling, pins and needles, electrical-type buzzing, burning, skin crawling, itching, partial numbness (like feeling through tent-cloth) and a variety of neuropathic pains." http://www.mult-sclerosis.org/paraesthesia.html When I had the hug, I had ALL of those sensations combined with a feeling like I was swollen. I also had severe sensitivity to touch, as if someone was scrubbing me with a SOS pad when they slightly brushed my skin. I have had a heaviness in the chest too, with "apparent" difficulty breathing, but had a COPD test and all was fine. ![]() I don't know if we really have a satisfactory description of what the "hug" is. What has me a bit stumped about your explanation is that pain relievers do not usually help at all (or very, very little) for neuropathic pain. ![]() If it were me, I'd be considering GERD or something like that instead. Cherie
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I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
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#6 | |||
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Member
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Thanks for replies..I know its hard to explain pain and also I forgot to mention that an echo was done on my pancreas. My PCP was thinking maybe pancreatis. That was normal also. Cherie, I was kinda thinking of GERD also. Again, thanks Ya'll
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God never promised a smooth journey, just a safe landing! |
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