advertisement
Reply
 
Thread Tools Display Modes
Old 08-16-2008, 03:44 AM #1
dmplaura's Avatar
dmplaura dmplaura is offline
Magnate
 
Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
dmplaura dmplaura is offline
Magnate
dmplaura's Avatar
 
Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
Default Symptom driving me wild

Ok, as some may know, I had a crappy week. Symptoms came back. Tingling in legs and such, numbness in legs and hands...

The 1 symptom I have that is really bad, painful even, that's constant, is in my head. From the very top of my head, down to my cheek bones (right above my top gum line), near the top middle part of the head, to the back of the head, not in the forehead at al, I have a feeling of pressure and heat sensation. It's painful. But a different kind of pain from a regular old headache.

I can't tell if it's migraine or MS. And at the end of the day, it doesn't matter what condition is causing it. Just how am I going to go about treating it.

Neuro's being seen Monday, and I'm definitely going to tell him about this. It's very agonizing as you can imagine.

Has anyone else had a similar pressure/heat feeling in their head? I've had this sensation in my legs, and I seem to recall having it in my head in the past, but my memory's foggy.
__________________
2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
dmplaura is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dejibo (08-16-2008)

advertisement
Old 08-16-2008, 06:39 AM #2
weegot5kiz's Avatar
weegot5kiz weegot5kiz is offline
Elder Member
 
Join Date: Jan 2008
Posts: 11,805
15 yr Member
weegot5kiz weegot5kiz is offline
Elder Member
weegot5kiz's Avatar
 
Join Date: Jan 2008
Posts: 11,805
15 yr Member
Default

http://neurotalk.psychcentral.com/forum26.html

Trigeminal Neuralgia

sounds very much like TN i am no expert but maybe you might be able to see if its a lot like this

there is also a headache forum here they helped me when i first got TN

I don't recall mine hurting down to the jaw but then again my head hurt so much it very well could been bothering me and i didn't feel it. yesterday here two others described their TN a lot like yours, was not sure if you knew where the TN forum was so threw in the link.

knowing what you are going through i found darkness was my friend ice helped too heck i was wearing my shades in the house at one point

I hope you feel better real soon
__________________

.


History doesn't repeat itself, but it does rhyme.............................Mark Twain



.
.......
.
...
.
weegot5kiz is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
dmplaura (08-16-2008), SallyC (08-16-2008)
Old 08-16-2008, 07:21 AM #3
yeahbut's Avatar
yeahbut yeahbut is offline
Magnate
 
Join Date: May 2007
Location: Beautiful Maine
Posts: 2,363
15 yr Member
yeahbut yeahbut is offline
Magnate
yeahbut's Avatar
 
Join Date: May 2007
Location: Beautiful Maine
Posts: 2,363
15 yr Member
Default

sorry you are having the crappy week continue! I had that headache a few years ago.... but I got it when I had Mono. It sounds just like it. Now I just get the prickle / tingle / numbness in the same area from the MS.

let us know what the Neuro says on Monday. Good luck! Does a cold cloth on your head / back of the neck help or where it hurts? I use that when I get a migraine. Some people use a warm rice bag but not me, I need cold in a dark room for a migraine.
__________________
Tough Times Don't Last ~ Tough People Do

Courage is doing what you're afraid to do. There can be NO courage unless you're scared.
yeahbut is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
dmplaura (08-16-2008)
Old 08-16-2008, 08:12 AM #4
Dejibo's Avatar
Dejibo Dejibo is offline
Elder
 
Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
15 yr Member
Dejibo Dejibo is offline
Elder
Dejibo's Avatar
 
Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
15 yr Member
Default

I dont normally have head/face pain. I did have spurts in the past that my jaw bone bugged me, but it turned out I needed a root canal to be re opened, and repaired.

I just wanted to say I was thinking of you, and hope you feel better soon. its the weekend! do something fun! distraction therapy is a good thing.
__________________
RRMS 3/26/07
.

Betaseron 5/18/07
.

Elevated LFTs Beta DC 7/07
Copaxone 8/7/07
.



.
Dejibo is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
dmplaura (08-16-2008)
Old 08-16-2008, 10:27 AM #5
lady_express_44's Avatar
lady_express_44 lady_express_44 is offline
Grand Magnate
 
Join Date: Aug 2006
Location: Vancouver, Canada
Posts: 3,300
15 yr Member
lady_express_44 lady_express_44 is offline
Grand Magnate
lady_express_44's Avatar
 
Join Date: Aug 2006
Location: Vancouver, Canada
Posts: 3,300
15 yr Member
Default

TN is most likely, but TMJ is another consideration.

Could you have infection of any kind? Are you having any other new or worsening of symptoms?

dmp

Cherie
__________________
I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
.
lady_express_44 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
dmplaura (08-16-2008), weegot5kiz (08-16-2008)
Old 08-16-2008, 01:10 PM #6
dmplaura's Avatar
dmplaura dmplaura is offline
Magnate
 
Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
dmplaura dmplaura is offline
Magnate
dmplaura's Avatar
 
Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
Default

Well, I am diagnosed as having TMJ, along with the MS.

My TMJ dentist suspected Trigeminal Neuralgia prior to my official MS diagnosis.

I always was under the impression that TN would affect 1 side, not 2.

This is from the center top of my head, down to my neck (involving all of my head, minus the forehead), and pain in my cheekbones. Not side specific.

Ugh, if only I could buy Aleve here!! WITHOUT a prescription! If I have inflammation in my jaw, I've no doubt that it could extend into other areas of the head. I've been here before.

One thing's for sure... either my burning mouth crap that I've dealt with so long is on it's way out finally and has moved to involve my head, or the head's experiencing such pain that I'm not focusing on the burning mouth. Silver lining in every cloud?
__________________
2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
dmplaura is offline   Reply With QuoteReply With Quote
Old 08-16-2008, 03:38 PM #7
NurseNancy's Avatar
NurseNancy NurseNancy is offline
Grand Magnate
 
Join Date: May 2007
Location: Florida
Posts: 4,240
15 yr Member
NurseNancy NurseNancy is offline
Grand Magnate
NurseNancy's Avatar
 
Join Date: May 2007
Location: Florida
Posts: 4,240
15 yr Member
Default

i don't know but monday can't come soon enuf.
i hope your dr can help you.
__________________
Judy
trying to be New Skinny Butt
______________________
You are a child of the universe, no less than the trees and the stars; you have a right to be here.
And whether or not it is clear to you, no doubt the universe is unfolding as it should.
--------------------------------------
"DESIDERATA" by Max Ehrmann
NurseNancy is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
dmplaura (08-16-2008)
Old 08-16-2008, 03:53 PM #8
lady_express_44's Avatar
lady_express_44 lady_express_44 is offline
Grand Magnate
 
Join Date: Aug 2006
Location: Vancouver, Canada
Posts: 3,300
15 yr Member
lady_express_44 lady_express_44 is offline
Grand Magnate
lady_express_44's Avatar
 
Join Date: Aug 2006
Location: Vancouver, Canada
Posts: 3,300
15 yr Member
Default

Quote:
Originally Posted by dmplaura View Post
One thing's for sure... either my burning mouth crap that I've dealt with so long is on it's way out finally and has moved to involve my head, or the head's experiencing such pain that I'm not focusing on the burning mouth. Silver lining in every cloud?
That reminds me of my pin-prick neurological itchiness . . . which is apparently a "misfired pain signal". If I have a few places going at the same time, I use antihisitmines (thanks to Chris' suggestion a couple of months ago). But, if it is just one spot, I use a freezer pack. Somehow the coldness distracts my brain from acknowledging the itchiness (which is actually pain ).

Quote:
Originally Posted by dmplaura View Post
Ugh, if only I could buy Aleve here!! WITHOUT a prescription! If I have inflammation in my jaw, I've no doubt that it could extend into other areas of the head. I've been here before.
My doc prescribes 100 X 500 mg of Naproxen at a time. I take 2 X 500mg per DAY, as necessary. Get a clinic (or your doc) to do the same . . . if you are not one to have tummy issues with Naproxen/Aleve.

Cherie
__________________
I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
.
lady_express_44 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
dmplaura (08-16-2008)
Old 08-16-2008, 04:08 PM #9
dmplaura's Avatar
dmplaura dmplaura is offline
Magnate
 
Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
dmplaura dmplaura is offline
Magnate
dmplaura's Avatar
 
Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
Default

I've actually taken Naxproxen on a few occasions. I didn't notice the stomach upset with it, but I was warned that it could definitely be an issue. The prescription I had came with warning stickers about the stomach. I believe it advises to eat with the pills, but it's been a while so I don't remember.

This weather we're having this summer is not helping my situation either. It's been raining for 3 weeks. Yesterday it was sunny (hurrah!) but today we're back to cloudy, rain, dismal. I've always been affected by pressure changes, but this is unreal!

My muscles in my shoulders are also sore... so I'm siding a bit on tension, but do tension headaches or pains create a burning sensation as well?

Urgh.
__________________
2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
dmplaura is offline   Reply With QuoteReply With Quote
Old 08-16-2008, 04:24 PM #10
weegot5kiz's Avatar
weegot5kiz weegot5kiz is offline
Elder Member
 
Join Date: Jan 2008
Posts: 11,805
15 yr Member
weegot5kiz weegot5kiz is offline
Elder Member
weegot5kiz's Avatar
 
Join Date: Jan 2008
Posts: 11,805
15 yr Member
Default

limit alcahol ,take with food and plenty of water, and not to be taken if in 3rd trimester of PG, side note do not take Aspirin with naxproxen, take the tylenol type of med, with it, been warned a few times by docs about this i cant recall why i just know 3 have warned me about it
__________________

.


History doesn't repeat itself, but it does rhyme.............................Mark Twain



.
.......
.
...
.
weegot5kiz is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
The Wild Moors john4 Creative Corner 0 05-22-2008 08:02 AM
off topic - the wild west jeanb Parkinson's Disease 5 05-17-2008 06:18 PM
Does Zanaflex give you wild dreams? Dejibo Multiple Sclerosis 9 02-01-2008 07:06 PM
Av8rgirl's wild adventure! tovaxin_lab_rat Multiple Sclerosis 26 12-04-2007 07:55 PM


All times are GMT -5. The time now is 10:14 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.