Reply
 
Thread Tools Display Modes
Old 08-26-2008, 12:51 PM #1
dmplaura's Avatar
dmplaura dmplaura is offline
Magnate
 
Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
dmplaura dmplaura is offline
Magnate
dmplaura's Avatar
 
Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
Default

Thanks folks!

Cherie, my dentist suspected Trigeminal Neuralgia all along. When I mentioned that to my neurologist (3 week long headache or migraine, dunno which honestly, with burning pain in my face) he said "Well, that's migraine".

I'll be quite honest, I do believe my first MS "symptom" that presented was Trigeminal Neuralgia. What other headache comes on suddenly on 1 side (4+ years ago, was my left side) and is so painful you're in a ball on your floor clutching your head, thinking you're having a seizure because of the repeated stabbing pain? That's what I thought I had then. Of course, me being a 'stubborn rough chick' I never went to neurologist at that time, and after a couple months and probably this occurring 4-5 times, those severe headaches just suddenly disappeared.

I had the spinal headache after my LP and ended up in ER, which if I placed alongside the headaches years earlier with the stabbing pain, the spinal was a 10/10 in pain, whereas the other headaches (suspected TN) were a 9/10.

The facial twitching alone would not have been a cause of alarm (was just annoying), but the fact my mouth was pulling up on the right, that's what had me in tears at the time. It was noticeable. I was self conscious going into public with that mouth pull happening. No one noticed unless I mentioned (or maybe they were being nice?) and then they would say "Oh, I see what you mean". That side's never fully gone back to being symmetrical to the left.
__________________
2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
dmplaura is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Bearygood (08-26-2008), weegot5kiz (08-26-2008)
Old 08-26-2008, 01:46 PM #2
Bearygood Bearygood is offline
Member
 
Join Date: Jan 2008
Posts: 970
15 yr Member
Bearygood Bearygood is offline
Member
 
Join Date: Jan 2008
Posts: 970
15 yr Member
Default

Laura, I don't have TN but I have been visited by "Da Twitch" many times!
Bearygood is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
dmplaura (08-26-2008)
Old 08-26-2008, 02:22 PM #3
dmplaura's Avatar
dmplaura dmplaura is offline
Magnate
 
Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
dmplaura dmplaura is offline
Magnate
dmplaura's Avatar
 
Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
Default

LOL 'Da twitch'. Sounds like a fandangled new dance huh?

Has the twitching gone on to involve 1 entire side for you folks?

I'm just glad this came and went over a period of a couple months. Not painful, but not pleasant and scary. Course if this occurs again, I'm a lot more 'aware' that this may just be MS saying "Yo, I'm back, wassup!".
__________________
2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
dmplaura is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Bearygood (08-26-2008)
Old 08-26-2008, 02:42 PM #4
Bearygood Bearygood is offline
Member
 
Join Date: Jan 2008
Posts: 970
15 yr Member
Bearygood Bearygood is offline
Member
 
Join Date: Jan 2008
Posts: 970
15 yr Member
Default

Never been that way for me but knowing this weirdo disease, you'll probably find someone who's experienced it that way!

Yes, "Da Twitch" visited me for a while last month and then THIS month it was the rhythm section in my right leg. Fortunately, the band has since retired.
Bearygood is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
dmplaura (08-26-2008)
Old 08-26-2008, 02:53 PM #5
dmplaura's Avatar
dmplaura dmplaura is offline
Magnate
 
Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
dmplaura dmplaura is offline
Magnate
dmplaura's Avatar
 
Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
Default

LOL @ the band retiring
__________________
2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
dmplaura is offline   Reply With QuoteReply With Quote
Old 08-27-2008, 08:28 AM #6
FinLady's Avatar
FinLady FinLady is offline
Grand Magnate
 
Join Date: Jan 2008
Location: Raised NY, Live OH
Posts: 3,060
15 yr Member
FinLady FinLady is offline
Grand Magnate
FinLady's Avatar
 
Join Date: Jan 2008
Location: Raised NY, Live OH
Posts: 3,060
15 yr Member
Default

Quote:
Originally Posted by dmplaura View Post
LOL 'Da twitch'. Sounds like a fandangled new dance huh?

Has the twitching gone on to involve 1 entire side for you folks?

Actually for me it was the other way around. I had tremors all through my right side in '06, which started my DX process. Nothing like finally having a symptom that could not be ignored or pushed under a rug, huh?

Those thankfully went away after 3 months, but now get eye and mouth twitches on occassion. My neuro thinks based on my MRI, those are remnants of what happened to me in '06. Those nerves haven't rerouted completely. I don't get the symptoms for TN, so I agree with him on that one.

So know you're not alone dancing "da twitch"
__________________
Strength comes in all types of packages, even those you don't expect

Dx'd MS 2007, Fibro 2009
FinLady is offline   Reply With QuoteReply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Stumped watsonsh Computers and Technology 4 07-11-2007 11:55 PM
Stumped again jamietwo Gluten Sensitivity / Celiac Disease 5 11-18-2006 03:49 PM


All times are GMT -5. The time now is 04:20 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.