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#1 | |||
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Magnate
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Thanks folks!
Cherie, my dentist suspected Trigeminal Neuralgia all along. When I mentioned that to my neurologist (3 week long headache or migraine, dunno which honestly, with burning pain in my face) he said "Well, that's migraine". ![]() I'll be quite honest, I do believe my first MS "symptom" that presented was Trigeminal Neuralgia. What other headache comes on suddenly on 1 side (4+ years ago, was my left side) and is so painful you're in a ball on your floor clutching your head, thinking you're having a seizure because of the repeated stabbing pain? That's what I thought I had then. Of course, me being a 'stubborn rough chick' I never went to neurologist at that time, and after a couple months and probably this occurring 4-5 times, those severe headaches just suddenly disappeared. I had the spinal headache after my LP and ended up in ER, which if I placed alongside the headaches years earlier with the stabbing pain, the spinal was a 10/10 in pain, whereas the other headaches (suspected TN) were a 9/10. The facial twitching alone would not have been a cause of alarm (was just annoying), but the fact my mouth was pulling up on the right, that's what had me in tears at the time. It was noticeable. I was self conscious going into public with that mouth pull happening. No one noticed unless I mentioned (or maybe they were being nice?) and then they would say "Oh, I see what you mean". That side's never fully gone back to being symmetrical to the left.
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2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
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"Thanks for this!" says: | Bearygood (08-26-2008), weegot5kiz (08-26-2008) |
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#2 | ||
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Member
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Laura, I don't have TN but I have been visited by "Da Twitch" many times!
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"Thanks for this!" says: | dmplaura (08-26-2008) |
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#3 | |||
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Magnate
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LOL 'Da twitch'. Sounds like a fandangled new dance huh?
![]() Has the twitching gone on to involve 1 entire side for you folks? I'm just glad this came and went over a period of a couple months. Not painful, but not pleasant and scary. Course if this occurs again, I'm a lot more 'aware' that this may just be MS saying "Yo, I'm back, wassup!".
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2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
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"Thanks for this!" says: | Bearygood (08-26-2008) |
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#4 | ||
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Member
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Never been that way for me but knowing this weirdo disease, you'll probably find someone who's experienced it that way!
Yes, "Da Twitch" visited me for a while last month and then THIS month it was the rhythm section in my right leg. Fortunately, the band has since retired. |
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"Thanks for this!" says: | dmplaura (08-26-2008) |
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#5 | |||
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Magnate
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LOL @ the band retiring
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__________________
2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
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#6 | |||
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Grand Magnate
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Quote:
Actually for me it was the other way around. I had tremors all through my right side in '06, which started my DX process. Nothing like finally having a symptom that could not be ignored or pushed under a rug, huh? ![]() Those thankfully went away after 3 months, but now get eye and mouth twitches on occassion. My neuro thinks based on my MRI, those are remnants of what happened to me in '06. Those nerves haven't rerouted completely. I don't get the symptoms for TN, so I agree with him on that one. So know you're not alone dancing "da twitch" ![]()
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Strength comes in all types of packages, even those you don't expect Dx'd MS 2007, Fibro 2009 |
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