Home Menu

Site Navigation



NeuroTalk Support Groups > > >

Sheena is going for HiCy

Reply
 
Thread Tools Display Modes
Old 09-04-2008, 02:58 PM #1
Desinie Desinie is offline
Member
  
Join Date: Jan 2008
Location: Pennsylvania
Posts: 500
15 yr Member
Desinie Desinie is offline
Member
 
Join Date: Jan 2008
Location: Pennsylvania
Posts: 500
15 yr Member
Default
You'll be in my prayers, Sheena. Please keep us updated on your progress.
Desinie is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
SallyC (09-04-2008)
Old 09-04-2008, 05:58 PM #2
gonnamakeit gonnamakeit is offline
Member
  
Join Date: Oct 2006
Location: Arizona
Posts: 392
15 yr Member
gonnamakeit gonnamakeit is offline
Member
 
Join Date: Oct 2006
Location: Arizona
Posts: 392
15 yr Member
Default
Sheena,

If I were in your shoes I would be going on the med too. It is one of a very few that actually work and it even reverses symptoms. That is a big WOW to me!!


Good luck to you.

gmi
gonnamakeit is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
SallyC (09-04-2008)
Old 09-04-2008, 06:25 PM #3
Bannet's Avatar
Bannet Bannet is offline
Senior Member
  
Join Date: Jan 2008
Location: Michigan
Posts: 1,125
15 yr Member
Bannet Bannet is offline
Senior Member
Bannet's Avatar
 
Join Date: Jan 2008
Location: Michigan
Posts: 1,125
15 yr Member
Default
I guess I've been out of the loop lately What is HiCy? I've seen it out here a few times but didn't pay attention. I thought they were talking about HiCi which is a nice fruity drink

I really don't know what it is
__________________

.


Roadtrip Wannabe
Bannet is offline   Reply With QuoteReply With Quote
Old 09-04-2008, 08:13 PM #4
greta greta is offline
Member
  
Join Date: May 2007
Posts: 713
15 yr Member
greta greta is offline
Member
 
Join Date: May 2007
Posts: 713
15 yr Member
Default
Best of luck to you - I hope it's a miracle drug!
greta is offline   Reply With QuoteReply With Quote
Old 09-04-2008, 08:35 PM #5
tovaxin_lab_rat's Avatar
tovaxin_lab_rat tovaxin_lab_rat is offline
Elder
  
Join Date: May 2007
Posts: 7,009
15 yr Member
tovaxin_lab_rat tovaxin_lab_rat is offline
Elder
tovaxin_lab_rat's Avatar
 
Join Date: May 2007
Posts: 7,009
15 yr Member
Default
Quote:
Originally Posted by Bannet View Post
I guess I've been out of the loop lately What is HiCy? I've seen it out here a few times but didn't pay attention. I thought they were talking about HiCi which is a nice fruity drink

I really don't know what it is
Revimmune.

http://www.accentia.net/science/revimmune.php
__________________
Cheryl
Dx: MS 2001 CRPS 2009
“When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford
tovaxin_lab_rat is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Bannet (09-05-2008), SallyC (09-04-2008)
Old 09-04-2008, 08:57 PM #6
PolarExpress's Avatar
PolarExpress PolarExpress is offline
Grand Magnate
  
Join Date: Jan 2008
Location: Red Wing, MN
Posts: 3,166
15 yr Member
PolarExpress PolarExpress is offline
Grand Magnate
PolarExpress's Avatar
 
Join Date: Jan 2008
Location: Red Wing, MN
Posts: 3,166
15 yr Member
Default
That's terrific news, Sheena! I've talked to a few who have gone thru it..Some have an easier time than others, but I haven't heard anyone regret it. I hope this is your "magic bullet" Sheena~be sure to let us know how you're doing!
__________________

.
PolarExpress is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
SallyC (09-04-2008), tovaxin_lab_rat (09-04-2008), weeble (09-05-2008)
Old 09-04-2008, 09:04 PM #7
Natalie8's Avatar
Natalie8 Natalie8 is offline
Member
  
Join Date: Apr 2008
Posts: 900
15 yr Member
Natalie8 Natalie8 is offline
Member
Natalie8's Avatar
 
Join Date: Apr 2008
Posts: 900
15 yr Member
Default
Hi Sheena, I'm so glad to hear you have some hope back in your life! I know things have been so hard since the diagnosis. I wish you the best with HiCy!! Know that we all fully support you 100%. Keep us posted on the process.
__________________
On Tysabri and love it.
.
Natalie8 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
SallyC (09-04-2008), tovaxin_lab_rat (09-04-2008), weeble (09-05-2008)
Old 09-05-2008, 01:44 AM #8
RedPenguins's Avatar
RedPenguins RedPenguins is offline
Member
  
Join Date: Jan 2008
Location: Southern California
Posts: 308
15 yr Member
RedPenguins RedPenguins is offline
Member
RedPenguins's Avatar
 
Join Date: Jan 2008
Location: Southern California
Posts: 308
15 yr Member
Default YAY Sheena!!
Sheena, I'm soooo glad you posted this and let everyone know. Everyone here, so far, has been supportive of me. (btw, did you get my email the other day??)

Anyhow, I'm glad you have your foot in the door - now we need to get the rest of you there.

I am just about 2 months post treatment (2 months since the last dose)... So far is has been a magic bullet for me. I'm still "recovering" - but not dealing with the MS symptoms barely nearly as much. It's amazing. No, I'm not saying I don't have MS and I'm not saying "cured" quite yet (time will tell on that) - but I will say this - I am improved in a way that none of the CRABs, etc. have done for most people. I also believe that I am HEALING. This isn't just about symptom reduction and a slowing of progression...but I really think this is the closest we have to a cure right now and I will stand by that belief for as long as I can!

A few weeks ago I received the neurologist's report from Dr. Kerr from my initial visit at JH. Man, I was in baaaaaaaaaaaaaaaad shape. It was very difficult for me to read how bad it was.

I was saying to someone the other day - "this has been amazing because I'm certain that by Xmas I would have been in a wheelchair and now I'm not even needing my cane!" And her response was: "Christmas??"

- I thought she meant that I was exaggerating the situation, that it wasn't nearly as bad as I was making it to be - so I said, "okay, next summer?" She replied - "NOOOOOOOO, it would've been sooner than Christmas even!" I was kinda shocked because even though I was saying how "bad" I was doing - I don't think I ever acknowledged just how bad it was for me.

Sheena - I am sooooo excited for you - and I hope you get in soon.

I need to finish creating my blog (yes, I've started it!!) - and then everyone who wants to know can learn more about this experience.

While I'm not 100% better - I'm at least 100% better than I was before. (Does that make sense?)

~Keri

ps/Oh, and my hair is growing back!!
RedPenguins is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
MSacorn (09-08-2008), Natalie8 (09-05-2008), PolarExpress (09-05-2008), Riverwild (09-05-2008), SallyC (09-05-2008), sheena (09-13-2008), tovaxin_lab_rat (09-05-2008)
Reply

« Previous Thread | Next Thread »

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
What HiCy is and why it's different chrishadms Multiple Sclerosis 11 07-06-2008 01:12 PM
Hello...LTNS...Sheena...other stuffs... MsMesS The Stumble Inn 9 03-25-2008 10:40 AM


All times are GMT -5. The time now is 08:00 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

All posts copyright their original authors.

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.

Always consult your doctor before trying anything you read here.

Home