advertisement
Reply
 
Thread Tools Display Modes
Old 09-16-2008, 06:27 PM #11
Judy2's Avatar
Judy2 Judy2 is offline
Senior Member
 
Join Date: Sep 2006
Location: PA
Posts: 1,236
15 yr Member
Judy2 Judy2 is offline
Senior Member
Judy2's Avatar
 
Join Date: Sep 2006
Location: PA
Posts: 1,236
15 yr Member
Default

Hey Becky -- how did your appointment go with your neuro? I sure hope he was able to give you something for the pain. I can definitely relate to that! With the weather changing the pain is acting up again. Let us know how you made out!!
__________________
_____________________________________________

.....Judy
SPMS -- FIBROMYALGIA -- Ouch! and Ouch!
.
Judy2 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Becky21 (09-16-2008)

advertisement
Old 09-16-2008, 06:29 PM #12
DM's Avatar
DM DM is offline
Legendary
 
Join Date: May 2007
Location: Around
Posts: 10,109
15 yr Member
DM DM is offline
Legendary
DM's Avatar
 
Join Date: May 2007
Location: Around
Posts: 10,109
15 yr Member
Default

WOW Beck~ that does sound strange. Hope you can get into your Cardio and that he'll be able to give you some definitive answers. Take care and keep us posted.

Sending hugs your way~~~~~
__________________
DM




.
DM is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Becky21 (09-16-2008)
Old 09-16-2008, 07:00 PM #13
NurseNancy's Avatar
NurseNancy NurseNancy is offline
Grand Magnate
 
Join Date: May 2007
Location: Florida
Posts: 4,240
15 yr Member
NurseNancy NurseNancy is offline
Grand Magnate
NurseNancy's Avatar
 
Join Date: May 2007
Location: Florida
Posts: 4,240
15 yr Member
Default

becky,

i'm sorry you're going thru all this.
your dr sounds great. i hope between the both of you and labs and consults that you will find an appropriate answer to what is going on...and then some relief.

sending prayers your way.
please take care and keep us posted.
__________________
Judy
trying to be New Skinny Butt
______________________
You are a child of the universe, no less than the trees and the stars; you have a right to be here.
And whether or not it is clear to you, no doubt the universe is unfolding as it should.
--------------------------------------
"DESIDERATA" by Max Ehrmann
NurseNancy is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Becky21 (09-18-2008)
Old 09-16-2008, 09:34 PM #14
JessieSue's Avatar
JessieSue JessieSue is offline
Senior Member
 
Join Date: May 2007
Location: Central PA, home of the Nittany Lions
Posts: 1,872
15 yr Member
JessieSue JessieSue is offline
Senior Member
JessieSue's Avatar
 
Join Date: May 2007
Location: Central PA, home of the Nittany Lions
Posts: 1,872
15 yr Member
Default

Becky I'm so happy to hear how pleased you are with your neuro, and that she's genuinely concerned and compassionate. It's great comfort to have someone really in your corner! I'm praying you'll be pain free ASAP!! Hang in there, I know you're one tough cookie!! Love ya!! XOXOXO
__________________
[[ ABBA Free Zone ]]

.

Rob Thomas, beautiful, beautiful, beautiful man!
.




.
JessieSue is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Becky21 (09-18-2008), weegot5kiz (09-17-2008)
Old 09-16-2008, 09:54 PM #15
weegot5kiz's Avatar
weegot5kiz weegot5kiz is offline
Elder Member
 
Join Date: Jan 2008
Posts: 11,805
15 yr Member
weegot5kiz weegot5kiz is offline
Elder Member
weegot5kiz's Avatar
 
Join Date: Jan 2008
Posts: 11,805
15 yr Member
Default

Becky sounds like a productive visit with the doc, hopefully the blood work or the gab dosage will ease the pain, keeping you in my prayers Becky
__________________

.


History doesn't repeat itself, but it does rhyme.............................Mark Twain



.
.......
.
...
.
weegot5kiz is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Becky21 (09-18-2008)
Old 09-17-2008, 11:26 AM #16
tkrik's Avatar
tkrik tkrik is offline
Wise Elder
 
Join Date: Jan 2008
Posts: 8,403
15 yr Member
tkrik tkrik is offline
Wise Elder
tkrik's Avatar
 
Join Date: Jan 2008
Posts: 8,403
15 yr Member
Default

Becky - Saying prayers that all works out well and you can start a better treatment plan. Let us know how everything goes.

BTW - I am not a thigh shooter as the swelling, reactions, etc. were horrible every time I did my thighs. So I stopped all together. One injection site took a year to clear up.
tkrik is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Becky21 (09-18-2008)
Old 09-17-2008, 11:46 AM #17
SandyC's Avatar
SandyC SandyC is offline
Wise Elder
 
Join Date: Jan 2008
Location: Somewhere over the rainbow
Posts: 9,227
15 yr Member
SandyC SandyC is offline
Wise Elder
SandyC's Avatar
 
Join Date: Jan 2008
Location: Somewhere over the rainbow
Posts: 9,227
15 yr Member
Default

Oh Becky, I pray there is nothing serious added to your already confusing pain.

When will you about the test results? I heard about the pill form of ms drugs. When does she think it will be approved?

I think you have a great doctor and hope you get answers soon.
__________________
. . A woman is like a tea bag. You never know how strong she is until she's in hot water. Eleanor Roosevelt
SandyC is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Becky21 (09-18-2008)
Old 09-18-2008, 04:45 PM #18
Becky21's Avatar
Becky21 Becky21 is offline
Magnate
 
Join Date: Jan 2008
Location: Heartland
Posts: 2,010
15 yr Member
Becky21 Becky21 is offline
Magnate
Becky21's Avatar
 
Join Date: Jan 2008
Location: Heartland
Posts: 2,010
15 yr Member
Default

I just lost my post for some reason and it was really long so I am going to try again.

Thank you all for your good wishes and concern.

I spoke with my former Cardiologist yesterday. I told him about my thighs and he said he thought it was the Zocor attacking the weak muscles at the Avonex injection site.

He said that I need to have my kidney functions checked to see if there is any abnormalties. If there are, then I will need to go to a Nephrologist for treatment. If the blood work comes back ok, then there is no treatment and it takes a long time before the swelling will go away.

As the swelling goes away, the nerves will be able to heal since they will not have the pressure on them. He said that it could be the Avonex and Zocor mix but he leans towards the problem being caused by Zocor. He told me that I should have blood work done every 4 weeks until this heals.

He told me not to ever take another cholestrol medication that is a statin. He said they have rare side effects that attack muscles. The wasted muscle filters through the kidneys and can cause serious damage even death in some cases that are not caught in time.

I spoke with my Neurologist and she was very happy to have the information from Dr. Dahr. She has never seen anything like this reaction in any of her MS patients. She was glad to hear that she had done the correct blood work on me. I told her that Dr. Dahr said I could call him with any questions or she could call him. She said she was very happy to know that and to learn the information he had provided about my situation.

Anyway, I pray that my blood work comes back normal and am trying to be very optimistic that I will heal with no problems but the passing of time.

Hugs to all my friends for your great support. Thank you.
__________________
Becky21
.


IMAGINE
RRMS - 1992 -- SPMS - 1993
Not on DMD's



.
Becky21 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
bluenurse (09-18-2008), Blues Girl (09-18-2008), Debbie D (09-19-2008), FinLady (09-18-2008), JessieSue (09-20-2008), NurseNancy (09-18-2008), SandyC (09-18-2008), tkrik (09-18-2008), Twinkletoes (09-18-2008), weegot5kiz (09-18-2008)
Old 09-18-2008, 04:48 PM #19
FinLady's Avatar
FinLady FinLady is offline
Grand Magnate
 
Join Date: Jan 2008
Location: Raised NY, Live OH
Posts: 3,060
15 yr Member
FinLady FinLady is offline
Grand Magnate
FinLady's Avatar
 
Join Date: Jan 2008
Location: Raised NY, Live OH
Posts: 3,060
15 yr Member
Default

Thanks for the update, becky. Definitely hope everything turns out ok.
__________________
Strength comes in all types of packages, even those you don't expect

Dx'd MS 2007, Fibro 2009
FinLady is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Becky21 (09-18-2008), weegot5kiz (09-18-2008)
Old 09-18-2008, 04:58 PM #20
Becky21's Avatar
Becky21 Becky21 is offline
Magnate
 
Join Date: Jan 2008
Location: Heartland
Posts: 2,010
15 yr Member
Becky21 Becky21 is offline
Magnate
Becky21's Avatar
 
Join Date: Jan 2008
Location: Heartland
Posts: 2,010
15 yr Member
Default

Thank you. I will let everyone know as soon as I get the information. I'm going to take a late nap. I'm exhausted with all of this going on.

Quote:
Originally Posted by FinLady View Post
Thanks for the update, becky. Definitely hope everything turns out ok.
__________________
Becky21
.


IMAGINE
RRMS - 1992 -- SPMS - 1993
Not on DMD's



.
Becky21 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Twinkletoes (09-18-2008), weegot5kiz (09-18-2008)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Neuro appointment today Snoopy Multiple Sclerosis 18 06-08-2008 12:59 PM
Frustrating neuro appointment barb02 Multiple Sclerosis 7 05-14-2008 12:09 AM
Neuro Appointment yeahbut Multiple Sclerosis 26 04-08-2008 11:54 PM
Neuro Appointment Myself Today yeahbut Multiple Sclerosis 21 02-14-2008 06:32 AM
Cross Fingers and Toes Please Julie Survivors of Suicide 7 03-09-2007 12:07 PM


All times are GMT -5. The time now is 02:50 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.