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#1 | |||
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Magnate
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Hope the appointment goes well, and that you find a solution for the pain.
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2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
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"Thanks for this!" says: | Becky21 (09-16-2008) |
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#2 | |||
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Magnate
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How was the apt dear??? hope helped...and dr had some ideas..hugsss,sarah
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"Thanks for this!" says: | Becky21 (09-16-2008) |
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#3 | |||
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Wise Elder
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How did it go Becky/Bff?
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. . A woman is like a tea bag. You never know how strong she is until she's in hot water. Eleanor Roosevelt |
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"Thanks for this!" says: | Becky21 (09-16-2008) |
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#4 | |||
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Magnate
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My Neuro has never seen anything like what is going on with my thighs. She was a professor of Neurology at OU so she has a lot of knowledge.
She has seen one abscess on a patients arm and one infected site from her MS patients but has never seen problems like I have both thighs. She said the pain I am having on the top on my thighs is from the swelling irritating the nerves under the skin. The strong nerve pain I am having on the side of my knees is from nerves that are trapped by the swelling. She has no idea if this could be the result of the Zocor but has definitely not ruled it out. She sent me to the lab and the took a ton of blood. She is checking to see if I have the condition that causes the muscles to waste away and I think that test is called a CPK test. She and I talked for an hour and decided that I would talk to my long time Cardiologist who retired in last Sept. He is still consulting for transplant patients. She has just moved into the Integris network in SW OKC 2 weeks ago and doesn't know a lot of the doctor's yet. My old Cardio is in the NW Integris network so I suggested it to her and she thought it was a good idea. She knows what a good doctor he is and even had his son as a student when she was teaching at OU. He and I have a close bond since he was my Cardio for 14 years. I tried to call him when I got home but he was gone for the day. I want him to take a look at my thighs to see if he has seen anything like this in his 40 years of practice. Since Cardiologists are usually the doctor's who prescribe cholesterol medication, he might have an idea of what is going on. If he doesn't, he will know who I should see. My Neuro said she was not going to put me on ANY DMD until they come out with the pill form that is in the works. No more shots for me!!!!!! She is extremely upset that this has happened and just so compassionate. She actually apologized to me. I told her it wasn't her fault. She is truly one of the nicest doctor's I have ever had. ![]() She wants me to start increasing my Gabapentin slowly to double what I am taking now. I didn't get any answers yet but hopefully I will soon. It may just take a lot of time for whatever this is to heal. I am not going back on Zocor no matter what the outcome of all of this. I am starting back on regular over the counter Niacin to try to control my cholesterol. ![]() That's everyone for crossing your fingers and your good wishes. ![]() ![]() ![]() ![]()
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Becky21 . IMAGINE RRMS - 1992 -- SPMS - 1993 Not on DMD's . Last edited by Becky21; 09-17-2008 at 01:56 PM. |
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"Thanks for this!" says: | barb02 (09-16-2008), Blues Girl (09-18-2008), ewizabeth (09-17-2008), FinLady (09-18-2008), JessieSue (09-16-2008), NurseNancy (09-16-2008), SandyC (09-17-2008), tkrik (09-17-2008), Twinkletoes (09-18-2008), weegot5kiz (09-16-2008) |
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#5 | |||
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Legendary
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WOW Beck~ that does sound strange. Hope you can get into your Cardio and that he'll be able to give you some definitive answers. Take care and keep us posted.
Sending hugs your way~~~~~
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DM . |
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"Thanks for this!" says: | Becky21 (09-16-2008) |
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#6 | |||
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Grand Magnate
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becky,
i'm sorry you're going thru all this. your dr sounds great. i hope between the both of you and labs and consults that you will find an appropriate answer to what is going on...and then some relief. sending prayers your way. please take care and keep us posted.
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Judy trying to be New Skinny Butt ______________________ You are a child of the universe, no less than the trees and the stars; you have a right to be here. And whether or not it is clear to you, no doubt the universe is unfolding as it should. -------------------------------------- "DESIDERATA" by Max Ehrmann |
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"Thanks for this!" says: | Becky21 (09-18-2008) |
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#7 | |||
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Senior Member
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Becky I'm so happy to hear how pleased you are with your neuro, and that she's genuinely concerned and compassionate. It's great comfort to have someone really in your corner! I'm praying you'll be pain free ASAP!! Hang in there, I know you're one tough cookie!! Love ya!! XOXOXO
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[[ ABBA Free Zone ]] . Rob Thomas, beautiful, beautiful, beautiful man! . . |
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"Thanks for this!" says: | Becky21 (09-18-2008), weegot5kiz (09-17-2008) |
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#8 | |||
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Elder Member
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Becky sounds like a productive visit with the doc, hopefully the blood work or the gab dosage will ease the pain, keeping you in my prayers Becky
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. History doesn't repeat itself, but it does rhyme.............................Mark Twain . ....... . ... . |
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"Thanks for this!" says: | Becky21 (09-18-2008) |
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#9 | |||
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Wise Elder
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Becky - Saying prayers that all works out well and you can start a better treatment plan. Let us know how everything goes.
![]() ![]() ![]() BTW - I am not a thigh shooter as the swelling, reactions, etc. were horrible every time I did my thighs. So I stopped all together. One injection site took a year to clear up. ![]() |
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"Thanks for this!" says: | Becky21 (09-18-2008) |
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#10 | |||
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Wise Elder
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Oh Becky, I pray there is nothing serious added to your already confusing pain.
![]() When will you about the test results? I heard about the pill form of ms drugs. When does she think it will be approved? I think you have a great doctor and hope you get answers soon. ![]()
__________________
. . A woman is like a tea bag. You never know how strong she is until she's in hot water. Eleanor Roosevelt |
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"Thanks for this!" says: | Becky21 (09-18-2008) |
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