How did it go Becky/Bff?

My Neuro has never seen anything like what is going on with my thighs. She was a professor of Neurology at OU so she has a lot of knowledge.

She has seen one abscess on a patients arm and one infected site from her MS patients but has never seen problems like I have both thighs.

She said the pain I am having on the top on my thighs is from the swelling irritating the nerves under the skin. The strong nerve pain I am having on the side of my knees is from nerves that are trapped by the swelling.

She has no idea if this could be the result of the Zocor but has definitely not ruled it out. She sent me to the lab and the took a ton of blood. She is checking to see if I have the condition that causes the muscles to waste away and I think that test is called a CPK test.

She and I talked for an hour and decided that I would talk to my long time Cardiologist who retired in last Sept. He is still consulting for transplant patients. She has just moved into the Integris network in SW OKC 2 weeks ago and doesn't know a lot of the doctor's yet.

My old Cardio is in the NW Integris network so I suggested it to her and she thought it was a good idea. She knows what a good doctor he is and even had his son as a student when she was teaching at OU. He and I have a close bond since he was my Cardio for 14 years.

I tried to call him when I got home but he was gone for the day. I want him to take a look at my thighs to see if he has seen anything like this in his 40 years of practice. Since Cardiologists are usually the doctor's who prescribe cholesterol medication, he might have an idea of what is going on. If he doesn't, he will know who I should see.

My Neuro said she was not going to put me on ANY DMD until they come out with the pill form that is in the works. No more shots for me!!!!!!

She is extremely upset that this has happened and just so compassionate. She actually apologized to me. I told her it wasn't her fault. She is truly one of the nicest doctor's I have ever had.

She wants me to start increasing my Gabapentin slowly to double what I am taking now.

I didn't get any answers yet but hopefully I will soon. It may just take a lot of time for whatever this is to heal. I am not going back on Zocor no matter what the outcome of all of this. I am starting back on regular over the counter Niacin to try to control my cholesterol.

That's everyone for crossing your fingers and your good wishes.

WOW Beck~ that does sound strange. Hope you can get into your Cardio and that he'll be able to give you some definitive answers. Take care and keep us posted.

Sending hugs your way~~~~~

becky,

i'm sorry you're going thru all this.
your dr sounds great. i hope between the both of you and labs and consults that you will find an appropriate answer to what is going on...and then some relief.

sending prayers your way.
please take care and keep us posted.

Becky I'm so happy to hear how pleased you are with your neuro, and that she's genuinely concerned and compassionate. It's great comfort to have someone really in your corner! I'm praying you'll be pain free ASAP!! Hang in there, I know you're one tough cookie!! Love ya!! XOXOXO

Becky sounds like a productive visit with the doc, hopefully the blood work or the gab dosage will ease the pain, keeping you in my prayers Becky

Becky - Saying prayers that all works out well and you can start a better treatment plan. Let us know how everything goes.

BTW - I am not a thigh shooter as the swelling, reactions, etc. were horrible every time I did my thighs. So I stopped all together. One injection site took a year to clear up.

Oh Becky, I pray there is nothing serious added to your already confusing pain.

When will you about the test results? I heard about the pill form of ms drugs. When does she think it will be approved?

I think you have a great doctor and hope you get answers soon.

I just lost my post for some reason and it was really long so I am going to try again.

Thank you all for your good wishes and concern.

I spoke with my former Cardiologist yesterday. I told him about my thighs and he said he thought it was the Zocor attacking the weak muscles at the Avonex injection site.

He said that I need to have my kidney functions checked to see if there is any abnormalties. If there are, then I will need to go to a Nephrologist for treatment. If the blood work comes back ok, then there is no treatment and it takes a long time before the swelling will go away.

As the swelling goes away, the nerves will be able to heal since they will not have the pressure on them. He said that it could be the Avonex and Zocor mix but he leans towards the problem being caused by Zocor. He told me that I should have blood work done every 4 weeks until this heals.

He told me not to ever take another cholestrol medication that is a statin. He said they have rare side effects that attack muscles. The wasted muscle filters through the kidneys and can cause serious damage even death in some cases that are not caught in time.

I spoke with my Neurologist and she was very happy to have the information from Dr. Dahr. She has never seen anything like this reaction in any of her MS patients. She was glad to hear that she had done the correct blood work on me. I told her that Dr. Dahr said I could call him with any questions or she could call him. She said she was very happy to know that and to learn the information he had provided about my situation.

Anyway, I pray that my blood work comes back normal and am trying to be very optimistic that I will heal with no problems but the passing of time.

Hugs to all my friends for your great support. Thank you.

Thanks for the update, becky. Definitely hope everything turns out ok.