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#1 | |||
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Member
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My current cognitive state leaves me unable to figure out how to reply.
Had a flare. Was in the hosptial for a week and a half. Have been home since Thursday. We're getting the ball rolling for me to switch from Betaron to Copaxone. Hope it will reduce the fx and severity of my MS flares. Found out last week that I was approved for SSDI; payments will begin the end of November. I also expect to receive $100 per month from KPERS, for school district and other state employees. Current symptoms seem to include mild cognitive/memory stuff, balance/walking issues, and lots of fatigue. ~ Faith
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aka MamaBug Symptoms since 01/2002; Dx with MS: 10/2003; Back in limbo, then re-dx w/ MS: 07/2008 Betaseron 11/2003-08/2008; Copaxone 09/2008-present Began receiving SSDI 11/2008 |
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"Thanks for this!" says: | barb02 (09-16-2008), dmplaura (09-16-2008), Gazelle (09-17-2008), Niko (09-17-2008), NurseNancy (09-16-2008), SandyC (09-23-2008), soxmom (09-16-2008), tkrik (09-17-2008), weegot5kiz (09-16-2008) |
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#2 | |||
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Elder
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Hi Faith,
I'm so sorry you had another flare. I hope things will get better for you when you make the switch to Copaxone. I hope they get you changed over soon. ![]()
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Wiz Turn Left at the next election. . RRMS DX 01/28/03 Started Copaxone again on 12/09/09 |
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"Thanks for this!" says: | FaithS (09-16-2008) |
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#3 | |||
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Magnate
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Welcome back Faith! Sorry to hear you've been in the hospital. Crossing my fingers for you that Copaxone does the trick!
Congrats on SSDI as well (I know very little about this, but I'm guessing it's a good thing?).
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2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
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#4 | ||
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Magnate
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hope you are feeling better soon Faith!!!
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sox . . |
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"Thanks for this!" says: | FaithS (09-16-2008) |
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#5 | |||
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Grand Magnate
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thanks for the update faith.
this has been a really long haul for you. i'm glad you get to stop work and get some benefits. take care.
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Judy trying to be New Skinny Butt ______________________ You are a child of the universe, no less than the trees and the stars; you have a right to be here. And whether or not it is clear to you, no doubt the universe is unfolding as it should. -------------------------------------- "DESIDERATA" by Max Ehrmann |
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#6 | |||
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Member
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Quote:
~ Faith
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aka MamaBug Symptoms since 01/2002; Dx with MS: 10/2003; Back in limbo, then re-dx w/ MS: 07/2008 Betaseron 11/2003-08/2008; Copaxone 09/2008-present Began receiving SSDI 11/2008 |
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"Thanks for this!" says: | NurseNancy (09-19-2008) |
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#7 | |||
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Grand Magnate
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Sounds like you've really been thru it! I'm so glad you're feeling better, and hope the Copaxone can do what the Beta couldn't..Take care!
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"Thanks for this!" says: | FaithS (09-17-2008), weegot5kiz (09-23-2008) |
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#8 | ||
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Senior Member
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Quote:
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He is your friend, your partner, your defender, your dog. You are his life, his love, his leader. He will be yours, faithful and true to the last beat of his heart. You owe it to him to be worthy of such devotion. Anonymous |
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"Thanks for this!" says: | FaithS (09-17-2008) |
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#9 | |||
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Senior Member
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Faith, I always find it hard to say congratulations on getting your disability benefits approved because it's a bittersweet occurrence. You get money, but it means that you really DO have a severe problem. And yes, you would rather be working. But you know what? You don't need the stress and the strain that it puts on your body.
Now at least you will have the time to recuperate. And you can always do volunteer work--like becoming an adult literacy tutor if you like teaching. So look on the bright side of it. ![]() Sorry to hear about the flare. That stinks. Hope you recover well and don't have any new lingering sx from it.
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A Hairy Chicken Is Better Than A Hairy Hand! |
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"Thanks for this!" says: | FaithS (09-19-2008) |
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#10 | |||
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Member
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Well, I have NO problem is saying a big congrats on your SSDI! It is bitter-sweet, but life is what it is. I do not qualify due to hours and things are not good.
I'm happy to hear you are out of the hosp, and a bit better. I hope the new meds work well for you. Oh, I know well what you mean by cog problems. I have not been right since I was dxed and I have a lot of cog issues. Hope Yours resolve as you improve!
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. ~ Sheena~ . |
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"Thanks for this!" says: | FaithS (09-19-2008) |
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