FAQ/Help |
Calendar |
Search |
Today's Posts |
![]() |
#1 | ||
|
|||
Junior Member
|
Well my MS has gotten worse there is no denying I am having many problems balance, fatigue, numbness on whole left side of body.Well went to the doctor Monday after having to go to emergency room over the weekend for steroids and she wants to up my neurontin to 1200mg a day, started me on Baclofen and went up on my Nortriptylan to 100mg a night. The Baclofen is very strong but I can tell a noticable differance if I take one whole pill and half it twice a day.Here is the problem.I have been working 50hrs a week around a stove and alone unsupervised. I have thought about quitting or stepping down as a manager because I have burnt myself numerous times not to mention falling. Would you step down or quit. I have so many bills and medical wise I keep on getting more and more. I am at a crossroad. But I at the point I really am scared of being alone with nobody there. What if I pass out or burn myself because I fall. I just don't know anymore.What would you do if this was the case. Of course it says don't make no rash decisions while in a flare.Hugs to all.
![]() |
||
![]() |
![]() |
![]() |
#2 | |||
|
||||
Wise Elder
|
Cole, it was the hardest decision I ever had to make, but the MS made it for me.
Is it possible to bring someone in to work alongside you? On your medical bills, call the billing departments directly and set up a monthly payment plan. Just about all of them will agree to a very small sum, and most will do it interest-free. Further, many will find miraculous ways to cut the actual bill rather dramatically. Look into your options with work in terms of other opportunities, determine with your doctor whether it is advisable for you to continue. I sure hope you can come to a peaceful solution or decision soon. I know exactly how frustrating it all is and would never want to relive any of it!
__________________
—Cindy For every day I choose to play, I set aside a day to pay. —AMN "Sometimes plastic wrap just won't cling, no matter how much money you put in the meter." —From the Book of True Wizdom Last edited by AfterMyNap; 09-18-2008 at 06:06 PM. |
|||
![]() |
![]() |
"Thanks for this!" says: | dmplaura (09-18-2008), weegot5kiz (09-18-2008) |
![]() |
#3 | |||
|
||||
Elder Member
|
Have you thought about, maybe its the heat from the stove, that is making your MS act up? I do think safety is an issue here, but only you can make this call, maybe going to manager would get you out of the heated areas a lot more and allow you to have more energy for a managers position, I just know i love cooking and make some good meals here,but it really reaks havoc on me, I hope you fine a solution, soon, and becareful please.,
__________________
. History doesn't repeat itself, but it does rhyme.............................Mark Twain . ....... . ... . |
|||
![]() |
![]() |
"Thanks for this!" says: | dmplaura (09-18-2008) |
![]() |
#4 | |||
|
||||
Wisest Elder Ever
|
I agree w/Frank. Let them know you feel unsafe working around the stove and maybe they can move you somewhere else...and cooler, too. Heat makes my MS sx go through the roof! Summer is not my friend....I live for cool weather.
Good luck with whatever you decide to do. It's no fun...I know. ![]()
__________________
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
|||
![]() |
![]() |
"Thanks for this!" says: | dmplaura (09-18-2008), weegot5kiz (09-18-2008) |
![]() |
#5 | |||
|
||||
Grand Magnate
|
i struggled for a long time before it became apparent i couldn't work anymore.
i would look into options for another job within your comp. see if they could make some reasonable accommodations per ADA guidelines. i'd also see your dr to start building a case to not be able to work. that will be important to document in your chart should you decide you can't do your job. and that will be important should you apply for ssdi. good luck. i know how hard this decision is.
__________________
Judy trying to be New Skinny Butt ______________________ You are a child of the universe, no less than the trees and the stars; you have a right to be here. And whether or not it is clear to you, no doubt the universe is unfolding as it should. -------------------------------------- "DESIDERATA" by Max Ehrmann |
|||
![]() |
![]() |
"Thanks for this!" says: |
![]() |
#6 | ||
|
|||
Senior Member
|
No advice just wanted to send:
![]()
__________________
He is your friend, your partner, your defender, your dog. You are his life, his love, his leader. He will be yours, faithful and true to the last beat of his heart. You owe it to him to be worthy of such devotion. Anonymous |
||
![]() |
![]() |
"Thanks for this!" says: | dmplaura (09-19-2008) |
![]() |
#7 | |||
|
||||
Magnate
|
__________________
2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
|||
![]() |
![]() |
![]() |
#8 | |||
|
||||
Grand Magnate
|
Do you have your health benefits covered by this job? Do you have short/long term disability coverage and life insurance? I wouldn't quit a job that offered me that because you are not likely to get those benefits anywhere else.
If you step down to a lower level or part time, and you have STD and LTD available to you at this job, then you will only make a % of your current salary if you have to leave the workforce. I guess I made that mistake because I stepped down from very high paying Sr Mgmt job to reduce the stress, and when I eventually went off on LTD (which pays me till 65 yrs old), my income was very small compared to if I had gone off when I was a manager. Did you say you are the manager? If so, could you change your own job description so that you are serving customers or doing something much less dangerous, and give the cooking job to someone else on staff? Cherie
__________________
I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
. |
|||
![]() |
![]() |
![]() |
#9 | ||
|
|||
Junior Member
|
Quote:
No I don't have any std or ltd they don't offer any benefits just good pay. I would take a drastic pay cut if I stepped down.But at the same time I know that I could have less stress. Yes I am the manager and wanting to step down to assistant but like I said big pay cut.I just don't know anymore I know I should listen to my body but at the same time the bills just keep coming. |
||
![]() |
![]() |
![]() |
#10 | |||
|
||||
Grand Magnate
|
i'm sorry you have such a tough decision to make.
maybe you should speak to your dr also. i hope with time you'll be able to come to the right decision for you.
__________________
Judy trying to be New Skinny Butt ______________________ You are a child of the universe, no less than the trees and the stars; you have a right to be here. And whether or not it is clear to you, no doubt the universe is unfolding as it should. -------------------------------------- "DESIDERATA" by Max Ehrmann |
|||
![]() |
![]() |
Reply |
|
|