advertisement
Reply
 
Thread Tools Display Modes
Old 10-02-2008, 11:40 AM #41
myscrewsbeloose's Avatar
myscrewsbeloose myscrewsbeloose is offline
Junior Member
 
Join Date: Jan 2008
Location: Vancouver, not BC - Washington, not DC
Posts: 13
15 yr Member
myscrewsbeloose myscrewsbeloose is offline
Junior Member
myscrewsbeloose's Avatar
 
Join Date: Jan 2008
Location: Vancouver, not BC - Washington, not DC
Posts: 13
15 yr Member
Default

GREAT news!!!
myscrewsbeloose is offline   Reply With QuoteReply With Quote

advertisement
Old 10-02-2008, 12:29 PM #42
tovaxin_lab_rat's Avatar
tovaxin_lab_rat tovaxin_lab_rat is offline
Elder
 
Join Date: May 2007
Posts: 7,009
15 yr Member
tovaxin_lab_rat tovaxin_lab_rat is offline
Elder
tovaxin_lab_rat's Avatar
 
Join Date: May 2007
Posts: 7,009
15 yr Member
Default

Quote:
Originally Posted by myscrewsbeloose View Post
GREAT news!!!
Thanks!! I may be over there visiting again soon!

BTW...you should see the horrible bruises on my arms from the blood draw!!! She was brutal on me...you saw it!

__________________
Cheryl
Dx: MS 2001 CRPS 2009




“When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford
tovaxin_lab_rat is offline   Reply With QuoteReply With Quote
Old 10-03-2008, 04:53 PM #43
weeble's Avatar
weeble weeble is offline
Junior Member
 
Join Date: Jul 2008
Location: Canada
Posts: 42
15 yr Member
weeble weeble is offline
Junior Member
weeble's Avatar
 
Join Date: Jul 2008
Location: Canada
Posts: 42
15 yr Member
Default

Cheryl, I'm glad it seems you've finally found a drug to fit your MS. I hope it continues, or gets even better.
__________________

.
This Too Shall Pass
.
weeble is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
tovaxin_lab_rat (10-03-2008)
Old 10-07-2008, 11:05 PM #44
tovaxin_lab_rat's Avatar
tovaxin_lab_rat tovaxin_lab_rat is offline
Elder
 
Join Date: May 2007
Posts: 7,009
15 yr Member
tovaxin_lab_rat tovaxin_lab_rat is offline
Elder
tovaxin_lab_rat's Avatar
 
Join Date: May 2007
Posts: 7,009
15 yr Member
Default

There are still people getting unblinded in this study. Heard from one site that they are calling the patients in and giving them all their information face to face instead of phone calls.

I still don't understand why I only got one piece of information....
__________________
Cheryl
Dx: MS 2001 CRPS 2009




“When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford
tovaxin_lab_rat is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
MSacorn (10-07-2008), SallyC (10-07-2008)
Old 10-08-2008, 07:07 PM #45
Riverwild's Avatar
Riverwild Riverwild is offline
Magnate
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
Riverwild Riverwild is offline
Magnate
Riverwild's Avatar
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
Default

Quote:
Originally Posted by Taffy View Post
Far out! We knew you were on the real stuff! How cool!

Now, where is the River?

Oh River dear! Let's duct tape her to a tree for saying that dirty work! (Blood draw)

River? Are ya hiding?
TWIPPY!! Good to see YOU!

Did someone mention .'`~BLOOD~'`.

Quit wasting the good duct tape! Blood is a GOOD thing! I love blood! I love doing blood draws! I can hit a vein better than most lab techs and I can do it in the back of a moving vehicle slamming over frost heaves at 75mph!

BLOOD blood BLOOD!

(sitting here waiting for Taffers to hit the floor)

(sorry for the hijack, FG! I just had to answer!)
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


.
I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
.

Negative for JC virus antibodies!
.

I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
.
Riverwild is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
tovaxin_lab_rat (10-08-2008), yeahbut (10-08-2008)
Old 10-08-2008, 08:48 PM #46
tovaxin_lab_rat's Avatar
tovaxin_lab_rat tovaxin_lab_rat is offline
Elder
 
Join Date: May 2007
Posts: 7,009
15 yr Member
tovaxin_lab_rat tovaxin_lab_rat is offline
Elder
tovaxin_lab_rat's Avatar
 
Join Date: May 2007
Posts: 7,009
15 yr Member
Default

Quote:
Originally Posted by Riverwild View Post
TWIPPY!! Good to see YOU!

Did someone mention .'`~BLOOD~'`.

Quit wasting the good duct tape! Blood is a GOOD thing! I love blood! I love doing blood draws! I can hit a vein better than most lab techs and I can do it in the back of a moving vehicle slamming over frost heaves at 75mph!

BLOOD blood BLOOD!

(sitting here waiting for Taffers to hit the floor)

(sorry for the hijack, FG! I just had to answer!)
Wait til Halloween! We can really have a good time with her!! Bwahaha!!
__________________
Cheryl
Dx: MS 2001 CRPS 2009




“When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford
tovaxin_lab_rat is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Riverwild (10-09-2008)
Old 10-09-2008, 08:23 AM #47
Jan4you's Avatar
Jan4you Jan4you is offline
Member
 
Join Date: Jan 2008
Location: Milwaukee WI
Posts: 245
15 yr Member
Jan4you Jan4you is offline
Member
Jan4you's Avatar
 
Join Date: Jan 2008
Location: Milwaukee WI
Posts: 245
15 yr Member
Default

GREAT Cheryl.. and for sharing GOOD news with us~!

Continued success...

Warmly Jan
__________________
Yes I believe in miracles~!!
Jan4you is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
tovaxin_lab_rat (10-09-2008)
Old 10-09-2008, 03:01 PM #48
Jules A Jules A is offline
Senior Member
 
Join Date: Jan 2008
Posts: 1,424
15 yr Member
Jules A Jules A is offline
Senior Member
 
Join Date: Jan 2008
Posts: 1,424
15 yr Member
Default

Quote:
Originally Posted by Av8rgirl View Post
I received a call from the Site Coordinator today with the information about the Tovaxin clinical trial.

I was receiving the real thing!!! Tovaxin not placebo!! Yeah! I asked about my MRIs during the trial and they are going to get back to me on that information.

The first question she asked me was what I thought I was on...drug or placebo and why. I told her drug and because I ran a fever each time I got a shot and my exacerbation rate went from 4 to 1 a year. She said I was the only one that got it right at my site!

I am so excited! And YES I am going to continue in the trial!

Woohoo!

I don't know how I missed this, many, many congratulations!!!
__________________
He is your friend, your partner, your defender, your dog. You are his life, his love, his leader. He will be yours, faithful and true to the last beat of his heart. You owe it to him to be worthy of such devotion.
Anonymous
Jules A is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
tovaxin_lab_rat (10-09-2008)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
More Good News (Tinged with some sad news) ali12 Reflex Sympathetic Dystrophy (RSD and CRPS) 25 06-22-2009 10:21 AM
Good news/too good to be true little rock Parkinson's Disease 0 09-06-2008 09:54 AM
Good news/bad news kinda thing jarrett622 Peripheral Neuropathy 15 08-25-2007 03:07 AM
Anyone have any accomplishments or good news? Bad news? Mari Bipolar Disorder 27 04-07-2007 06:31 AM


All times are GMT -5. The time now is 10:35 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.