NeuroTalk Support Groups - Neuro Called Back

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Multiple Sclerosis (https://www.neurotalk.org/multiple-sclerosis/)

- - Neuro Called Back (https://www.neurotalk.org/multiple-sclerosis/55373-neuro-called.html)

You just want to copy me right after your dx! Now you just stop this! No more exacerbations, Lambchop! Seriously, enough is enough!

I hope the oral pred helps you...hugs!

:hug:

I'm so sorry to read about the exacerbation dear Yabbit, but at the same time I'm glad the neuro called you back and you have some treatment ordered. :hug:

http://i187.photobucket.com/albums/x...psie/24097.jpg

Quote:

Originally Posted by yeahbut (Post 381196)

Thanks Everyone.... last night was a rough night but I took my first dose of roids this morning so it will only get better from here, RIGHT?

I am on the 4 day drop / 25 mlg each.

If this doesn't help I will talk to him about the Solumel. Thanks for the suggestion - I think? :rolleyes:

Yabbit,
Does your post indicate you are taking 4 25 mg pills a day? That's not a very high dose.

The last time I was on steroids was before I started Tysabri. I went on vacation with a giant bottle of 180 pills. They were 20 mg each and I had to take 30 pills twice a day for three days.

I didn't have the usual side effects with the pills that I have with the IVSM. I still did the Zantac 150s three times a day, had no trouble with stomach, no rages like with the IV Solumedrol, I slept normally and they seemed to do the job they were meant to do.

How are you feeling?

(I found out the the Tower is open until the 31st! You get a tour of the fort too, they are open 9a to 5p for the month of Oct.)

Quote:

Originally Posted by Av8rgirl (Post 381460)

You just want to copy me right after your dx! Now you just stop this! No more exacerbations, Lambchop! Seriously, enough is enough!

I hope the oral pred helps you...hugs!

:hug:

I decided I couldn't let you go through it by yourself - just wanted to be there for ya!!! :hug:

Quote:

Originally Posted by Riverwild (Post 381580)

Yabbit,
Does your post indicate you are taking 4 25 mg pills a day? That's not a very high dose. Yes, that is it!

The last time I was on steroids was before I started Tysabri. I went on vacation with a giant bottle of 180 pills. They were 20 mg each and I had to take 30 pills twice a day for three days.

I didn't have the usual side effects with the pills that I have with the IVSM. I still did the Zantac 150s three times a day, had no trouble with stomach, no rages like with the IV Solumedrol, I slept normally and they seemed to do the job they were meant to do.

How are you feeling?

(I found out the the Tower is open until the 31st! You get a tour of the fort too, they are open 9a to 5p for the month of Oct.)

I am not feeling very good at all - actually have had a pretty rough day. I ended up falling coming in from the car tonight.

My legs are in so much pain and feel like they are going to go out from under me every step I take. This I have to admit is the worst I have ever felt. I am even going to call the neuro tomorrow and let them know. I know I have only had the first dose of Predizone but when I get to the point that I want to cry (and yes have done it a few times today) then it is time to call the neuro.

I feel like such a baby but jeese this is so very painful!

I am heading to bed and try to get some sleep. I even took a sleeping pill just to get some rest. Tomorrow is another rest day for me.

RW- you tell me that you can go on such and such day and I will be there!!!!!!!!! I sure would LOVE to be able to go this year. What pictures we could get! I am open on the 18th if you can go then????

Quote:

Originally Posted by yeahbut (Post 381600)

I decided I couldn't let you go through it by yourself - just wanted to be there for ya!!! :hug:

I am not feeling very good at all - actually have had a pretty rough day. I ended up falling coming in from the car tonight.

My legs are in so much pain and feel like they are going to go out from under me every step I take. This I have to admit is the worst I have ever felt. I am even going to call the neuro tomorrow and let them know. I know I have only had the first dose of Predizone but when I get to the point that I want to cry (and yes have done it a few times today) then it is time to call the neuro.

I feel like such a baby but jeese this is so very painful!

I am heading to bed and try to get some sleep. I even took a sleeping pill just to get some rest. Tomorrow is another rest day for me.

RW- you tell me that you can go on such and such day and I will be there!!!!!!!!! I sure would LOVE to be able to go this year. What pictures we could get! I am open on the 18th if you can go then????

18th works for me!!! It's lunch and the Tower, and the tour of the fort since it's included in the cost! We'll take our time!

You are NOT a baby for feeling bad when you are ill!

Please let us know what the neuro has to say. I'm glad that you have a rest day scheduled in. It truly does help. :hug::hug::hug:

Quote:

Originally Posted by Riverwild (Post 381900)

Oh cool - I am so excited!! That means we will be together two weekends in a row!! Oh boy! :eek:

Oral Pred made me feel crappy, period. I took it a couple of times after I'd had IVSM and swore I would never take it again. I know it works for some people but it never did for me. Just made me sick...and it didn't help at all.

I would think that you would qualify for some sort of assistance program since you are unemployed. What about through the school? I know our local college has an insurance program for students. Have you checked into that? It's pretty inexpensive.

Did you opt for COBRA when you left your job?

I know, too many questions...

Quote:

Originally Posted by Av8rgirl (Post 382422)

Oral Pred made me feel crappy, period.

That's 'cuz you're not supposed to chew the tablets.

Quote:

Originally Posted by yeahbut (Post 382170)

Oh cool - I am so excited!! That means we will be together two weekends in a row!! Oh boy! :eek:

Okay, this is just wrong in so many ways. Make it three and git yer butts down heah!

Quote:

Originally Posted by AfterMyNap (Post 382426)

Okay, this is just wrong in so many ways. Make it three and git yer butts down heah!

If I had the extra money I would be right theah!

FG - my employer had less than 20 employee so he they didn't have to offer COBRA, so no to that one.

The community college I go to is so small they don't offer an insurance.

Am calling Monday to see about getting health insurance from the State.

I am pretty sure the steroids are not working yet except for making me NOT hungry and that terrible taste in my mouth.

FG, I think that was all your questions....

RE: insurance through the college-

I SWEAR if anything happens to my job I am signing up for classes with the state university system.

We checked the insurance out pretty thoroughly when the teen went. She is still covered under Dad for now, but they have a good selection of options and it wasn't that much per year.

If I remember correctly, they cover you as long as you are taking three or more credits per semester...isn't that one class most of the time? I have the latest offering letter somewhere in a pile of mail, I'll look for it and let you know what I find. It may be worth taking your classes through the U system for the insurance.