| FAQ/Help |
| Calendar |
| Search |
| Today's Posts |
|
|
10-03-2008, 12:37 PM
|
#1 | |||
|
||||
|
Senior Member
|
Quote:
Thank you! I have vision issues, too. Perhaps you are right about it going together. UPDATE: I saw the neuro this morning and left there with several referrals. It seems like he feels there is something going on. Referral #1 - Neuro-Opthalmologist for the abnormal eye movements and my vision problems with the computer. Referral #2 - Neuro who specializes in balance problems. Referral #3 - Neuropsychologist for retesting to see how much I'm slipping. Referral #4 - Occupational therapy for my hand problems with writing / keyboarding. Then, I have to get a new brain MRI and then he also ordered IVSM for after all of the above to see if I get good benefits out of it like I used to, but he really wants all of the testing done first. I'm going to be a busy girl.
__________________
Dx: CNS Demyelinating Disease (2005) Take me back to days full of monkeyshines Bouncin' on a bubble full of trouble in the summer sun Keep your raft from the riverboat Fiction over fact always has my vote And wrinkles only go where the smiles have been... Jimmy Buffett from "Barefoot Children in the Rain" . |
|||
|
 Reply With Quote
|
| "Thanks for this!" says: | Gazelle (10-03-2008), TwoKidsTwoCats (10-03-2008) |
|
10-03-2008, 01:15 PM
|
#2 | |||
|
||||
|
Magnate
|
Quote:
I've learned to always make an appointment with my eye guy when I was relapsing. He was the one who suggested MS right at the start when I had ON and I trust him completely when it comes to getting to the root of my eye stuff. I even went to a neuro-opthalmologist once and he didn't catch what my regular guy did. Hugs to you, ya lil pincushion! I hope things get better for you soon! Let us know how it goes. 
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
|||
|
|
Reply With Quote
|
| "Thanks for this!" says: | hollym (10-03-2008) |
|
10-03-2008, 01:25 PM
|
#3 | ||
|
|||
|
Magnate
|
I hope the neuros plan helps Holly. Im going thru something similar
right now. I was playing a new game with my 10 and 5 yr old yesterday and was trying to read the directions to figure out how to play and I was so confused.  Finally with some help from my dd, we figured itout but sheeesh.  I hope things improve.
__________________
sox . . |
||
|
|
Reply With Quote
|
| "Thanks for this!" says: | hollym (10-03-2008) |
|
10-03-2008, 01:27 PM
|
#4 | |||
|
||||
|
Senior Member
|
Quote:
Maybe you should talk to your neuro, too!
__________________
Dx: CNS Demyelinating Disease (2005) Take me back to days full of monkeyshines Bouncin' on a bubble full of trouble in the summer sun Keep your raft from the riverboat Fiction over fact always has my vote And wrinkles only go where the smiles have been... Jimmy Buffett from "Barefoot Children in the Rain" . |
|||
|
|
Reply With Quote
|
| "Thanks for this!" says: | soxmom (10-03-2008) |
|
10-03-2008, 03:34 PM
|
#5 | |||
|
||||
|
Senior Member
|
Holly, things did get a bit better with me after my really horrible cog problems in 2003. So there is hope.
I'll keep my fingers crossed for you with the neuropsych testing. I know how frustrated you must feel right now. It's a real #^@#! to handle. Hang in there though. The neuropsych, if you ARE slipping, should have some good suggestions for you on how to compensate--maybe things you haven't tried too.
__________________
A Hairy Chicken Is Better Than A Hairy Hand! |
|||
|
|
Reply With Quote
|
| "Thanks for this!" says: | hollym (10-03-2008) |
|
10-03-2008, 08:49 PM
|
#6 | |||
|
||||
|
Senior Member
|
Holly,
I finally figured out that my cognitive problems almost always were linked to not sleeping enough. It is a simple thing to check.... If the alarm has to wake you everyday, then you aren't sleeping enough. Your body will wake itself when you have had enough! And I, like Gazelle, have come back to pre problem cognitive powers! So don't give up! Puzzles, games (join us on Lighter Side here)....studying with kids...reviewing simple math facts....playing board games like Memory.... |
|||
|
|
Reply With Quote
|
| "Thanks for this!" says: | hollym (10-03-2008) |
|
10-04-2008, 09:19 PM
|
#7 | ||
|
|||
|
Junior Member
|
I have the same problem with the cognitive stuff. I am a teacher and the year has just started and I feel overwhelmed already. It's so hard to multi-task and keep track of stuff.
I was hoping for IVSM but the neuro's PA wanted me to wait and try Tysabri on Monday, my first infusion. I am in a horrible depression and my psych RN just increased my Wellbutrin XL and my Xanax and then I am back to see him in two weeks. I am a complete mess. I am exhausted, lucky if I eat once a day, could sleep forever, and have no desire to do anything. My cog fog mistakes are daily and hard with me being a teacher. I'm just plain worn out. Good luck, Weebs |
||
|
|
Reply With Quote
|
| "Thanks for this!" says: | hollym (10-06-2008) |
|
10-03-2008, 01:25 PM
|
#8 | |||
|
||||
|
Senior Member
|
Thanks, River! He is a good doc. He was actually very concerned that I would get fired or written up at work. He would actually pull me out of work under doctor's orders if I was in danger of that. My bosses actually told me that even at the rate I'm going right now, that I'm still smarter than most people! I'm blessed that they are patient and understanding bosses.
He was also really concerned about me driving and making mistakes, but I told him it made me way mroe cautious than normal. I've become one of those people who waits for an invitation before pulling out! He seemed satisfied with that for now until he gets the results of this additional testing.
__________________
Dx: CNS Demyelinating Disease (2005) Take me back to days full of monkeyshines Bouncin' on a bubble full of trouble in the summer sun Keep your raft from the riverboat Fiction over fact always has my vote And wrinkles only go where the smiles have been... Jimmy Buffett from "Barefoot Children in the Rain" . |
|||
|
|
Reply With Quote
|
| Reply |
|
|
Similar Threads
|
||||
| Thread | Forum | |||
| TBI & Cognitive disabilities | Traumatic Brain Injury and Post Concussion Syndrome | |||
| DBS and Cognitive Decline | Parkinson's Disease | |||
| What mistakes/oooppppssss have you made due to cognitive / memory issues ??? | Multiple Sclerosis | |||
| Cognitive Question | Multiple Sclerosis | |||
| Cognitive Issues Getting Worse! | Multiple Sclerosis | |||
Hybrid Mode
