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10-11-2008, 07:49 PM
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I got the results back from my 3 month follow-up MRI. (it was 3 months on October 6 - which coincidentally was just about 9 months since I first got sick and dx.)
NO NEW LESIONS!! NO ENHANCING LESIONS!! And the report said "SLIGHT" improvement on previous lesions!! I don't have the report in front of me (left it in friend's car)....but it wasn't bad news by any means. No lesions whatsoever on cervical or thoracic spine (had had C-spine MRI once...but never T spine). I'm quite happy - as my last MRI had 2 new lesions... (after 5 weeks on Copaxone and 1 Tysabri treatment) Appt with my local neuro was also very positive. Even though I'm having some issues (not happy that I have a few symptoms - but it had been 100+ degrees for more than 2 weeks and I have a cold or virus that my immune system hasn't been able to kick) the exam was amazingly different than my previous exams!! Even the neuro commented on a positive note (and I don't think he is capable of emotion), so this was huge. Also had a NEGATIVE Romberg test for the first time since dx in January!! I can't believe it!!!  My hair is growing back - have some nice peach fuzz - actually, a little more than that....however, it is coming in very grey (salt n pepper) - and I'm only 32....so I'm not thrilled about that....but I'm going to be coloring it this weekend. I still wear a wig to work when I see clients...otherwise, I wear a hat or scarf....though lately I sometimes take it off and go without anything. Anyhow, just wanted to share. My blog is almost fully done - so I will post that shortly. I continue to remain very grateful for having the HiCy treatment - I've now had 3 months of improvement and NO worsening....which is a complete turnaround from the previous 6 months, when I was worsening daily. ~keri |
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10-11-2008, 08:33 PM
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Junior Member
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That is awesome news. I was so glad to see your post and read such positive gains for you.
Hugs, Weebs |
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| "Thanks for this!" says: | RedPenguins (10-12-2008) |
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10-11-2008, 09:19 PM
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Grand Magnate
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keri,
that's really great news. i'm so happy for you. here's to con't gains in the future.
__________________
Judy trying to be New Skinny Butt ______________________ You are a child of the universe, no less than the trees and the stars; you have a right to be here. And whether or not it is clear to you, no doubt the universe is unfolding as it should. -------------------------------------- "DESIDERATA" by Max Ehrmann |
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| "Thanks for this!" says: | RedPenguins (10-12-2008) |
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10-11-2008, 11:13 PM
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Elder
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Sounds good Keri! I hope you continue to improve.
Thanks for the update, it's good to hear from you 
__________________
Cheryl Dx: MS 2001 CRPS 2009 “When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford |
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| "Thanks for this!" says: | RedPenguins (10-12-2008) |
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10-11-2008, 11:16 PM
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Grand Magnate
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Woohoo! Congratulations!
__________________
Rochelle . . I've lost my mind ... and I don't miss it! LIFE HAS NO REMOTE -- GET UP AND CHANGE IT YOURSELF! |
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| "Thanks for this!" says: | RedPenguins (10-12-2008) |
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10-12-2008, 04:01 AM
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Twinkle - I like your bouncing heads on the trampoline...tonight my 2yo g-dson/nephew had me jumping in the house - jumping over the space station he made out of magna-tiles, then up and down the steps that separate some of the rooms, etc. Jumping and bouncing like the puppy.... Ho hum. Couldn't have done that before this treatment!
See,I did this:  And Journey's mama saw that and thought:    But low and behold...Holy Sheep - I didn't go thud. I giggled and laughed as I jumped around the room at the end of a long day playing with and chasing the two year old!!
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| "Thanks for this!" says: | SallyC (10-12-2008) |
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10-12-2008, 01:01 PM
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In Remembrance
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Such good news, Keri..
Thanks for the update, I think of you often. Cold, cold go away and don't come back another day..
__________________
~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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10-13-2008, 10:41 AM
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Grand Magnate
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I'm counting on you to be a HiCy poster-person for us . . . so you just keep on getting better!!!
Cherie
__________________
I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
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10-13-2008, 11:29 AM
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Senior Member
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Good deal, Keri !!!!
-Vic |
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10-13-2008, 06:11 PM
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Senior Member
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WAY TO GO, KERRI!!!!! What wonderful news!! Whew, I'm tired just watching you jump.
 Sending hugs and good thoughts for continued improvement. Love your "little people" emoticons!!
__________________
_____________________________________________ .....Judy SPMS -- FIBROMYALGIA -- Ouch! and Ouch! . |
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