HUGS to YOU and your wife~! She is lucky to have you as her partner and spouse in this awful delimma.

Althought I dont have information about spinal myoclonus..keep posted on as many sites as you can. I believe in being "guided".. wait and see where this will take you.

But I really can relate to your seizure problem..as my poor hubby did go through so much in that area.. 2 brain surgeries..then the VNS and many many antiseizure meds.. to no avail.

She is so young.. around my age. I too have an autonomic problem that presents as seizure activity at times. No one seems to know what to do.. so I see my own Certified nutritionist..who has an amazing eval tool.. and has helped a lot with many symptoms I have. My 2 neuros are impressed with the help I have received and are open to his work.

Again your love and devotion to your lovely wife is amazing and like my signature.. I do believe in miracles.. and you both need some hope.

Remember to take care of yourself too..and we'll be here for YOU and offer caring support ok?

Warmly Jan

Hi

I suffer from severe abdominal stomach spasms which i have just been told is a form of myoclonus.
I've had an MRI scan which shows a slight widening of the central canal in the spine, this may be the cause - has this been looked at for your wife? It could be putting pressure onto the spine and causing the spasms.
Other tests I have had are an EGM and an SSEP - I have not had the results yet, but depending on what they say the Drs may find the cause for the myclonus. If they do then it should be treatable, if not it's using different drugs.
I take clonazepam when i have an attack which does seem to help - has your wife tried this?
I'll keep you posted if i find anymore out after my results.

warmest wishes to you and your wife.

I saw that Baclofen was one of the drugs she is getting PO, but there is an option for a Baclofen pump which puts the medication directly into the spinal canal for severe cases where oral Baclofen is not effective enough. You might want to ask if that is appropriate for your wife.

I am so sorry she is having such a rough time. I am sure she is grateful for your care and love. I do pray that things will start to improve for her and you.

Hugs and welcome to you, it sounds like you have been through the wringer.

Please try the NMSS.org (national ms society) They have loads of great info.

Also you can google the Rocky Mountain MS center, they too have TONS of great info.


I dont have any personal experience with this, but hope you are finding answers soon.

Welcome to NT, Howard. Although I don't have any suggestions for your wife's situation, just wanted to say Hi and what a great guy you are for standing with her! That's not always the case.

My thoughts and prayers will be with both of you.

Welcome Howard.

Maybe something on this "WE MOVE" link will help. It has a lot of information on "Myoclonus" and Spasticity also. Good luck to you and you wife.

http://www.wemove.org/myo/