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Old 10-05-2008, 07:55 AM #1
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Default Sometimes you want to go

...where everybody knows your user name. Or if they don't know your name, they know where you're coming from.

It's like a refreshing, relaxing, uplifting break from the "real world" of work and family and life in general that shores me up and makes it possible to continue on.

The people out there who don't get it aren't bad, they aren't even necessarily wrong, they just don't have that one thing in common that draws me here.

When I speak of Neurotalk to my husband or my daughter or my friend, I never say "message boards". I always say "the online support group" or just "the support group". A message board is for chit-chatting about perennials or antique tractors. This place isn't about posting, it's about communicating. (Though we can chit-chat here, too. Thanks, DocJohn)

You don't have to explain yourself until your lips turn blue, or defend your fatigue, or pretend to agree because you're sick of correcting.

You don't have to fake a good mood when your muscle spasms kept you from getting any sleep or when you discovered one more thing you can't do anymore.

You can gripe or sob about any symptom, or consequence of symptoms, any diagnosis or lack thereof, and reap a bountiful harvest of cyber-hugs and cyber-understanding.

Sometimes you just want to go where everybody is in the same boat. It helps keep me from sinking. God bless you all.
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Old 10-05-2008, 08:21 AM #2
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Amen to that!! It is a blessing to have this place where people understand what you're experiencing, and you don't have to pretend to feel good...
and it's a great place to find actual laughter...these folks here have a great sense of humor (and of the absurd), and it's always great to find a thread that makes you laugh.
And to find support...
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Old 10-05-2008, 08:29 AM #3
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I agree, too! It's so nice not to have to explain every little thing.....I get so tired of feeling like I have to justify my condition to people who don't understand.

I don't know what I'd do without this place and these friends I've found here.
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Old 10-05-2008, 08:50 AM #4
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I am in total agreement. I generally just tell my friends and falily that I am fine or okay, and then come here for real support and understanding. And sometimes it is fun just to be silly.
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Old 10-05-2008, 10:56 AM #5
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This is our home away from home and was started by DocJohn, who realized that and heard our cries, when that other place went down. The person who ran that message board, did not know how we felt or seem to care. He lost all of our archives and took his time getting the site back up. Too little, too late.

I will forever remember DocJohn in my prayers.

I love you All..
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Old 10-05-2008, 03:01 PM #6
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Just for the record, I still frequent "the other place", and some of my friends are there also. It's not the same as NT, but it's still good. Both meet my needs in different ways.
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