LOL you know my blood is STILL boiling over this B.S. As a matter of fact I was in the shower stewing about it just now. I believe what I'll do is hand the letter to the doctor when he comes in to see me and I *dare* him to ask me if I'm a new patient. My hubby attends all neuro appointments with me so I'm sure the neuro will hear about it from the both of us. And this isn't the first time we've had to complain to him about his office staff. I think the only requirement to work there is to be an uncaring B.

The problem with these specialists, quite frankly, is they know they have us by the you know what. I mean, who knows, he may "fire" me at my appointment and then what - no meds and no doc. It really sucks. I can say this much, if the appointment doesn't go well, I will lodge a formal complaint with the ADA since apparently it is against the law to be prescribing meds to a patient for over three years without seeing them, per my health plan administrator. Looks like they're the ones with the problem, not me as I had absolutely no idea and I have other friends with MS who never have to see their docs for refills. I would like to think if there was an issue, they know how to pick up the phone and call me.

As far as getting reminder phone calls, this doctor's office never calls but I always call to confirm my appointment since that incident of the disappearing appointment. LOL

Cannot wait to hear your update on this! MY blood is Boiling just reading about it!!!

All I can say is that I feel so blessed to have my neuro. He is always way behind (as in an hour or more) and he is scheduled out many months (my next appt is June 12, 2009 and that was the next avail appt when I booked it after my appt a couple weeks ago) BUT he is caring and takes all the time I need when I'm in there. He also has a wonderful nurse and assistant who handle everything in between. He will also call me on the phone if I need him and will squeeze me in the schedule if there is an urgent concern.

One of the best things he does is makes sure to rx enough of a drug. For example, my Provigil rx is written as 2 doses of 200 mg per day. He does that to make sure I can get enough with one copay even if I don't need to use that much every day. He is sensitive to the fact that things can change quickly and that it is much easier to adjust dosages if you have enough of the med on hand.

He gave me a titration schedule when I first started this and told me to adjust anywhere in between 50 mg per day up to the max of 400 mg per day. He told me to just do what I needed to for my body and to take occassional breaks from it if it stops working. I cannot imagine a neuro scolding you for not taking MORE of this drug. It is a powerful stimulant.

Unfortunately for me, Provigil just isn't working for me anymore. Now, we are talking about maybe trying an ADHD type of med like Adderall depending on what the neuropsych testing reveals.

I hope you get through to this neuro and that he sees your point in this. I hope this is just the office staff being a bunch of morons and that it doesn't really reflect him.