Ignore them....

Thanks for the update Cheryl. I hope it gets approved for you!

I will keep you posted. Not sure I want steroids. We shall see how things go over the next couple of days.

But, neuro exam did not go well. No balance, could not walk on toes or heels. Could not feel the tuning fork on big toes. No reflexes in knees, heels, arms. Fingers and palms of hands are now numb. And of course, there's this right leg issue...tight as a board. Walking is fun! NOT...

Hmmm....I am thinking I have MS right now!

I am sorry the appointment didn't go well. That just plain sucks. I hate when they test and probe and then look and say things aren't better.

Jim's problem is in his right leg too. His left leg was the problem child and now the right wants to get in the action.

Let's pray it's just from all you've been doing and it's a temporary situation.

I love my neuro here. The appt went very well...as I suspected. I have been feeling icky for about 2-3 weeks. The leg spasm thing was just the icing on the cake, so to speak.

It's the clinical trial doc that I have a hard time dealing with. He is 450 miles away and I can't just hope on over there at a moment's notice for an appt.

Ouch calf cramps! I get wicked cramps (spazams) in my left leg (bad one) only. They kill. I've been taking extra calcium, eating more bannanas, making smoothies ( yougurt, fruit, OJ and ice ) and drinking tonic water (quinine).

All that doesn't stop them. When I get one , mostly when I'm sleeping, I have to get up and stretch and bend and I can loosen it up bit it, usually feels like its still there.

I have some flexeral that I use when my neck or lower back freaks out and come to think of it when I use it = less cramps. The problem with that is that it seems if I use it to often it isn't as effective with the neck and back thing.

So lately I've been trying to stretch out a couple times a day. It seems to help some. I can usually tell when cramps are coming because my foot twitches.

Smoking a couple of puffs of MJ works sometimes but not consistantly but it does stop the foot twitching.

Why do we have to deal with all this crap?

I have been trying to walk them off, but they have been so bad lately that I can't put any weight on my leg. Only makes it worse

Been doing some stretching during the day and I get weekly deep tissue massages to help with the atrophy in my calf/thigh muscles.

I drink milk, 2 -3 yogurts a day, lots of calcium, potassium citrate, and my banana, so that's not an issue.

Allergic to mj. Yep.

Can't drink anything carbonated.

Thanks for the suggestions.

The cramps/spasms seem to increase when I am headed for/having a relapse. Seem to be about the only time they are really a problem. Otherwise, they are manageable...??? whatever that is. The meds keep them tolerable...

PS..welcome to NT!

that is just the pits cheryl.
i'm sorry you're having so much trouble.

how long have you been in this study?
do you think it's helping.
is it double blind? or do you know what you're getting?
i'm curious to know why you want to stay in it.

do you think the steroids will help?
thanks for keeping us updated.
i'm glad your neuro is being proactive and listening to you.

That drug trial? I'd get in touch with the doctor even if it is by phone or email.

Some drugs deplete magnesium big time. And who knows if this new drug you are on does that? Getting a bruise like this is not common, and also rather scary--- that platelets might be affected. So you need to contact that doctor running your
trial and report this. Others may be reporting it and he might be able to help you with it.

If an artery or arteriole becomes blocked (spasm of the wall or clot), it will back up the venous return in that area, slow down the blood flow and the blood may clot and break a vein. But this is not common.

Magnesium improves blood flow, and relaxes the smooth muscle of the arteries. I am sure you know I have a magnesium thread in Vitamin forum.
It will not do much for your numbness, however, or other issues, but it may help with your spasms.