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Old 10-26-2008, 08:26 AM #1
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Blessings2You Blessings2You is offline
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Join Date: Jan 2008
Location: Vermont
Posts: 6,726
15 yr Member
Default Frustrating

How in the world can I possibly "explain" MS to anybody else when I don't even understand it myself??

I have a really good day, so good that I catch myself thinking, "Am I a big fat fraud? Is it all in my mind? Have I been healed?"

Then I have a really bad day, when I wonder how soon I'll be in a wheel chair, how I can possibly go to work, how long I'll be able to stay in my home.

I can overdo it, and maybe one time out of ten, the next day I'm...fine! Go figure!

I can do everything right, plan ahead, take it easy, save up my spoons, and the next day it's as if I've biked up Mt. Everest backwards.

So I'm trying to "explain" to people that not only is MS different for different people (No, I don't have ON; no, I can't work 60 hours a week like your friend; no, I'm not totally disabled like your mother) it's different for ME at any given time.

Well, it's not boring.
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