Originally Posted by Av8rgirl

It's been a week since I saw my non-clinical trial neuro. I walked, sort of, out of her office with orders for 3 days of IVSM, a new rx for provigil, possibly an MRI, knowing I would have to wait for the IVSM to be approved by clinical trial doc.

It's been a week...of pure frustration. Unreturned phone calls. No information. And Sunday I woke up with a sore throat and now I have one of my quarterly (seems like) nasty head colds.

Today I emailed clinical trial docs nurse...told her I have a cold (which I am required to do per protocol and mentioned that local neuro had been trying to contact doc.) No response.

Call local doc and left message with nurse. He's a really nice guy, but yesterday he told me at 9:15 am that he would talk to doc and get right back to me. Today at 12:15, 27 hours later, nothing. I leave a message that says, this is my last phone call. I am sick, no one is returning my calls, no one cares that I am in pain and am sick. I am not calling anymore. Good bye. I did leave my name...probably didn't have to!

About an hour later, I get a phone call from him and he says that my doc talked to clinical trial doc....

MRI of brain from the trial shows no progression! GOOD NEWS!!! YEAH.
NO STEROIDS. Approved for MRI of the entire spine, w and w/o contrast. Start on Lyrica for leg pain.

Gee, last week, he didn't have the MRI of my brain. Excuse me...it wasn't available to me.

Picked up the Lyrica rx..expensive stuff even through Tricare!!! Yowsa!!
I ask the pharmacist about side effects. Drowsiness. Great. I am supposed to take 1 capsule 2-3 times a day....sure. If it causes drowsiness for normal people, it's likely to put me OUT! Also may cause blurry vision. Just what I need...already having problems seeing! Drowsy and blurry....hmmmm....how am I going to tell? That's my norm lately! LOL!

So, that's my week...hope everyone else is doing better than me!! Wanna buy some flowers?

Originally Posted by Victor H

I am sorry that you are going through this garbage.

Let's hope that the medication works and the side-effects are less than expected.

-Vic

PS: Check your flower store website for the orders going to Hilton in Pasadena, CA.

-Vic