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Old 10-29-2008, 11:32 AM #1
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It just doesn't work well for some, there is a variety of results from the TOS forum members that have tried it.
I don't recall if there was any adaptation time mentioned by the TOS members ... to see if side effects calm down or not..

I know the blurry vision was mentioned, weight gain, 1 or 2 thought their blood sugar was affected by it.{ they had no problems with blood sugar # before and even after quitting the Lyrica it was an issue}
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Old 10-29-2008, 11:44 AM #2
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Quote:
Originally Posted by Jo55 View Post
It just doesn't work well for some, there is a variety of results from the TOS forum members that have tried it.
I don't recall if there was any adaptation time mentioned by the TOS members ... to see if side effects calm down or not..

I know the blurry vision was mentioned, weight gain, 1 or 2 thought their blood sugar was affected by it.{ they had no problems with blood sugar # before and even after quitting the Lyrica it was an issue}
I talked to the pharmacist about the weight gain issue. He said that when people suffer from pain, they tend not to eat. When the pain subsides, they regain their appetite. That is usually the reason for the weight gain.

I did some research about this drug a month or so ago when they tried to put me on it but the clinical trial doc said no. Now he has changed his mind and said yes.

I am such a lightweight when it comes to any meds that cause drowsiness that I hesitate to take them at all during the day. This one really knocked me out last night. I cannot imagine taking it during the day. Within an hour I was seeing double...not just blurry. Maybe it's because I have a cold, I am more sensitive so I will give it time once I am over this cold.
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Old 10-29-2008, 11:48 AM #3
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Cheryl, I hope the med helps without major side effects. Do they still have you on Sinemet? Jim's seems to be finding some relief with the combo baclofen, tizanidine and Sinemet. We like to call it his spasm cocktail. lol
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Old 10-29-2008, 12:01 PM #4
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Cheryl, I hope the med helps without major side effects. Do they still have you on Sinemet? Jim's seems to be finding some relief with the combo baclofen, tizanidine and Sinemet. We like to call it his spasm cocktail. lol
Yes, I am still on the Sinemet. I cannot take Baclofen nor tizanidine. This is neuropathic pain. It was either this or neurontin. Also taking the klonopin.

They both don't think it's an exacerbation just increased symptoms.

Fatigue is taking it's toll on me but it isn't because I am working full time, I've been doing that for quite awhile, I just need to get a handle on this pain. It's causing more fatigue as we all know.

Thanks everyone

Sandy...what does of Sinemet is Jim on now?
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Old 10-29-2008, 12:05 PM #5
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He's on two 25/100 pills twice a day. He isn't completely cured of course but his legs are not as tight and seem to be more loose. He's also using mj to ease the symptoms.

He's having a side effect from Sinemet though. It's keeping him awake at night. We're trying benedryl at night to see if that helps. He did sleep better but didn't fall out until around 5am. Do you have this problem? The doctor doesn't want to prescribe another pill and we don't either. If he does it will be tamazapam. Ugh.
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Old 10-29-2008, 12:37 PM #6
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Quote:
Originally Posted by SandyC View Post
He's on two 25/100 pills twice a day. He isn't completely cured of course but his legs are not as tight and seem to be more loose. He's also using mj to ease the symptoms.

He's having a side effect from Sinemet though. It's keeping him awake at night. We're trying benedryl at night to see if that helps. He did sleep better but didn't fall out until around 5am. Do you have this problem? The doctor doesn't want to prescribe another pill and we don't either. If he does it will be tamazapam. Ugh.
Really...not had that problem with it at all. Didn't even know it was a side effect! Wonder if it's something else!
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Old 10-29-2008, 03:34 PM #7
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Quote:
Originally Posted by Taffy View Post
May I offer you some chicken noodle soup?

gag* Watching FG through my covered eyes eat her soup!
MURDERER!!!!! How COULD you (1) offer her soup made of ch...chic....chick...ch....... oh.... I can't even SAY it <shudders in horror> and (2) watch her cannibalize a chi...chick....ch......ugh......
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Old 10-29-2008, 03:39 PM #8
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Quote:
Originally Posted by Gazelle View Post
MURDERER!!!!! How COULD you (1) offer her soup made of ch...chic....chick...ch....... oh.... I can't even SAY it <shudders in horror> and (2) watch her cannibalize a chi...chick....ch......ugh......
Not to worry CG...I don't like chicken soup. But it was the thought that counts!! It's the comforting part of Twiffy....she wants me well again. You gotta give her some slack!

I had tomato soup! (besides, that other soup has MSG in it!)
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Old 10-29-2008, 03:39 PM #9
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feel better flygirl.
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Old 10-30-2008, 09:32 AM #10
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Really...not had that problem with it at all. Didn't even know it was a side effect! Wonder if it's something else!
I don't know but he's sleeping better adding Benedryl. He's still waking up in the night though. I moved his Sinemet to 5pm to see if that helps. It's a hit or miss at this point. It is listed as a side effect and this started about two weeks after starting Sinemet. Ugh. His doc almost took him off it as soon as I said something and Jim said no. If he's not sleeping in a week then he'll have to try something else.
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