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#1 | |||
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Co-Administrator
Community Support Team
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It just doesn't work well for some, there is a variety of results from the TOS forum members that have tried it.
I don't recall if there was any adaptation time mentioned by the TOS members ... to see if side effects calm down or not.. ![]() I know the blurry vision was mentioned, weight gain, 1 or 2 thought their blood sugar was affected by it.{ they had no problems with blood sugar # before and even after quitting the Lyrica it was an issue}
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"Thanks for this!" says: | tovaxin_lab_rat (10-29-2008) |
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#2 | |||
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Elder
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Quote:
I did some research about this drug a month or so ago when they tried to put me on it but the clinical trial doc said no. Now he has changed his mind and said yes. ![]() I am such a lightweight when it comes to any meds that cause drowsiness that I hesitate to take them at all during the day. This one really knocked me out last night. I cannot imagine taking it during the day. Within an hour I was seeing double...not just blurry. Maybe it's because I have a cold, I am more sensitive so I will give it time once I am over this cold.
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Cheryl Dx: MS 2001 CRPS 2009 “When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford |
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#3 | |||
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Wise Elder
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Cheryl, I hope the med helps without major side effects. Do they still have you on Sinemet? Jim's seems to be finding some relief with the combo baclofen, tizanidine and Sinemet. We like to call it his spasm cocktail. lol
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. . A woman is like a tea bag. You never know how strong she is until she's in hot water. Eleanor Roosevelt |
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#4 | |||
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Elder
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They both don't think it's an exacerbation just increased symptoms. Fatigue is taking it's toll on me but it isn't because I am working full time, I've been doing that for quite awhile, I just need to get a handle on this pain. It's causing more fatigue as we all know. Thanks everyone ![]() Sandy...what does of Sinemet is Jim on now?
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Cheryl Dx: MS 2001 CRPS 2009 “When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford |
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"Thanks for this!" says: | SandyC (10-29-2008) |
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#5 | |||
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Wise Elder
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He's on two 25/100 pills twice a day. He isn't completely cured of course but his legs are not as tight and seem to be more loose. He's also using mj to ease the symptoms.
He's having a side effect from Sinemet though. It's keeping him awake at night. We're trying benedryl at night to see if that helps. He did sleep better but didn't fall out until around 5am. Do you have this problem? The doctor doesn't want to prescribe another pill and we don't either. If he does it will be tamazapam. Ugh.
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. . A woman is like a tea bag. You never know how strong she is until she's in hot water. Eleanor Roosevelt |
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#6 | |||
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Elder
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Quote:
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Cheryl Dx: MS 2001 CRPS 2009 “When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford |
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"Thanks for this!" says: | SandyC (10-30-2008) |
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#7 | |||
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Senior Member
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A Hairy Chicken Is Better Than A Hairy Hand! |
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"Thanks for this!" says: | Taffy (10-29-2008), tovaxin_lab_rat (10-29-2008) |
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#8 | |||
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Elder
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Quote:
I had tomato soup! (besides, that other soup has MSG in it!)
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Cheryl Dx: MS 2001 CRPS 2009 “When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford |
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"Thanks for this!" says: | Gazelle (10-29-2008) |
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#9 | ||
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Magnate
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feel better flygirl.
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sox . . |
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"Thanks for this!" says: | tovaxin_lab_rat (10-29-2008) |
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#10 | |||
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Wise Elder
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Quote:
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. . A woman is like a tea bag. You never know how strong she is until she's in hot water. Eleanor Roosevelt |
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"Thanks for this!" says: | tovaxin_lab_rat (10-30-2008) |
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