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#1 | |||
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Elder Member
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the only way to find out its not working and or working is to stop taking it, I have been on it for 3 yrs and have had 3 new lesions, even Nero the neuro hemmed and hawwed at me staying on it, he wants to give it some more time with the LDN, so i am a lab rat for ~10 more months, I honestly can not tell you if it is working or not for me, and I dont care for being in suspended animation, its more of a me me me thingy here I dont like it had two bad reactions and one really freaky one, they think I might of hit a nerve injecting, paralyzed myself from hips down for almost 40 minutes, but the other two reactions, were those rarely seen ones where your heart races you feel like your having a major kicker,
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. History doesn't repeat itself, but it does rhyme.............................Mark Twain . ....... . ... . |
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#2 | |||
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Member
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Thank you for the suggestions, Sally. After a lot of reading I am now thinking about LDN alone. It's interesting to me that the FDA releases meds after clinical trials on about 100 people...but Dr. Bihari's HUGE list of MS patients on LDN is considered anecdotal because he has not forked out the bucks to do trials with placebos!
I am inclined to subscribe to a theory that says building the immune system is a good thing. ![]() weegot5kiz, thank you for your honest answer. I am assuming that you are talking about side effects from the Copaxone? How long have you been on the LDN? By the way, I am sorry to hear that you are experiencing more lesions. ![]()
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Brenda . Dx with RRMS 2/05 Avonex 3/05 LDN 11/08 |
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