FAQ/Help |
Calendar |
Search |
Today's Posts |
|
11-03-2008, 11:23 AM | #1 | |||
|
||||
Wisest Elder Ever
|
I got this information in an email and thought I'd share it with everyone here:
http://www.mscare.org/cmsc/index.php
__________________
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
|||
Reply With Quote |
11-03-2008, 11:51 AM | #2 | |||
|
||||
Wise Elder
|
Thanks Kitty. Jim and I found the presentation on muscle spasms very interesting. We think we're going to talk to Jim's doctor about the baclofen pump or at least get Jim evaluated for it. I didn't know they give you a test injection before they install the pump to make sure it will work. Thanks!
__________________
. . A woman is like a tea bag. You never know how strong she is until she's in hot water. Eleanor Roosevelt |
|||
Reply With Quote |
"Thanks for this!" says: | Kitty (11-03-2008), weegot5kiz (11-03-2008) |
11-03-2008, 09:33 PM | #3 | |||
|
||||
In Remembrance
|
Thanks Kell, Interesting about the protein running around freely in our spinal fluid..
When I was 1st dx, Neuro said the protein in the fluid is one of the signs of MS....I guess this is new info though....good to know...I hope it helps find a cure.
__________________
~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
|||
Reply With Quote |
"Thanks for this!" says: | Kitty (11-04-2008), weegot5kiz (11-03-2008) |
11-03-2008, 09:54 PM | #4 | |||
|
||||
Elder Member
|
so they either find something to combat this renegade protein? or what? be able to find MS easier if this protein is present, ? interesting article, hope they are able to use this info for a surer test and or a vaccine, wouldnt that be great for the future
__________________
. History doesn't repeat itself, but it does rhyme.............................Mark Twain . ....... . ... . |
|||
Reply With Quote |
11-03-2008, 11:53 PM | #5 | |||
|
||||
Elder
|
Quote:
If you want, I can put you in touch with him for some information.
__________________
Cheryl Dx: MS 2001 CRPS 2009 “When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford |
|||
Reply With Quote |
"Thanks for this!" says: |
11-04-2008, 11:10 AM | #6 | |||
|
||||
Wise Elder
|
Jim's doctor said no. He said they like to wait and make sure all other avenues have been exhausted before they even consider the pump. He said they would like to see more ambulatory patients who can stand somewhat and/or non-ambulatory patients who's spasms are so severe medication hasn't helped before installing the pump. He feels Jim is getting some relief and wants to see Jim stay on the Sinemet longer before that is talked about. He up'd his Sinemet to three times a day but wont go for more because it has a saturation limit and will stop working at that point. He said he has three patients using the pump and each has their own set of problems and wants to wait on Jim going that avenue.
So, we wait.
__________________
. . A woman is like a tea bag. You never know how strong she is until she's in hot water. Eleanor Roosevelt |
|||
Reply With Quote |
"Thanks for this!" says: |
Reply |
|
|
Similar Threads | ||||
Thread | Forum | |||
More Good News (Tinged with some sad news) | Reflex Sympathetic Dystrophy (RSD and CRPS) | |||
BBC News: BBC News website meets Carolyn Noble, about being a PD Nurrse Specialist | Parkinson's Disease | |||
Good news/bad news kinda thing | Peripheral Neuropathy | |||
ES Cell news tonight on the NBC Nightly News | Parkinson's Disease |