hi bird and welcome to NT.
glad you found us.

i second all the above advice you've been given.
you might keep a brief journal of dates and sx's (symptoms). a timeline may help drs when doing your H&P (history & physical).

start to keep a record on yourself too.
in the states we have a legal right to get copies of our records. mri's too.
that can help another dr when you see them down the road.

i hope you get the answers you need.
please keep us posted.

My first visit to the neurologist starts, "This very fit 41 year-old woman...."

My legs is where this started for me and it's where I still have the most problem. Heavy legs, numbness in my feet and legs, banding.... I loved to dance and now I feel like a fool because the best I can seem to do is the hokey pokey--it doesn't require grace. And lately it's like I'm a friggin' walking zombie when I get off a piece of cardio equipment like an elliptical or bike.

It often takes time to figure out what's going on. Hang in there and try to adapt your exercise routine to what your body can handle. But for goodness sake, keep working out if you can! It's good for your mind and your body.

Best of luck with your "yet another" neurologist visit. Hope you get some answers.

Just wanted to say hi and welcome.

Bbird,

I went through the same thing as a youngster in school, but the first neurologist that I saw was a new medical school graduate and she determined within 15 minutes that I had either a brain tumor (ugh) or MS. One MRI later and even with negative LP results, I was diagnosed with MS. The entire process took about six hours (I think).

With MS now a reality, I became an information grazer...reading everything available about neurological issues.

Here is what I learned:
(1) If it acts like MS then treat it as MS until data show otherwise.

(2) Even though you do not need them, learn how to use every tool for walking/moving that is available (cane, walker, wheelchair, scooter) so that if you do need one of them in the future you will already have experience. Jan at MS World gets credit for this one.

(3) Listen and learn from the experiences of others.

(4) Understand that your physician is not always correct. They know that.

(5) Do what you can every day.

(6) Make a "Bucket List" and start checking off items when possible. You will love yourself for doing it...I promise you.

Keep us aprised of how things are going.

-Vic