I hope you can get something to relieve the pain and get relief...something a dental surgeon told me once was to take very warm cloth and put over the jaw joint...then open the mouth enough to get a tooth brush in.

With the end of the brush, lightly massage the very back muscle in the jaw between the gums...it did help some...might give it a try and hope it works for you...

Thank you COK.

I try to avoid the jaw because on top of everything else, I have TMJ. Sigh.

That's why I went to the dentist originally, who then told me "You have Trigeminal Neuralgia as well".

Could I get any more pain? For seriously.

Ugg - sounds like a nightmare...so sorry you are experiencing this.

I, too, have TMJ - in fact, my first symptom of the MS was that the right side of my face went completely numb - from mouth to scalp. At first I was certain it was my TMJ acting up - as my jaw was not "hitting" properly. I thought - oh, maybe a pinched nerve.

I went to my dental specialist, told him what was going on - and he told me it was NOT the TMJ and to get to a neurologist as soon as possible. (Scary, huh? - but I still had NO idea it was MS - still kept thinking it must be a pinched nerve!)

Anyhow - I have heard that cymbalta is VERY good for nerve pain. It is an anti-depressant....it also seems to work well with those who have MS. In fact, I had had drug-resistant depression for years - and then two years ago the doc put me on cymbalta - and voila! Improvement for the first time in nearly 15 years! Again, this was before I knew that I had MS. Might be worth a try? Might even had additional benefits!

Good luck - and keep us posted.

~Keri

Cymbalta's one that's actually in my GP and neuro's offices (right up front) so I believe it's one both fully believe in, and very much could be a possibility. I appreciate the suggestion

I have no answer, but to say I agree with what the others have said, I have a and some positive vibrations,(said in my best bob marley voice) that this dang headache(no pun intended) goes away.hope this persistent PITA gives it a rest soon, pretty sure you would like that too I hope you can get some more answers, have any of the docs mentioned a a pain specialist?, thats who my neuro sent me to but my TN is not as bad as yours or as bad as some others on here,

My neurologist has not even admitted to recognizing that I have Trigeminal Neuralgia at all...even though my dentist who is a dental specialist specifically in the area of dental and cranial pain told me I have TN after my EMGs.

So it's getting the neuro to admit that TN is part of my MS first, and then proceeding from there. I didn't want TN, but I believe it is part of the puzzle for sure.

Woke up today, was fine.. for about 10 minutes, then the head pain began to start up again, so I took 2 extra str tylenol 1's with codeine, and 1 .5 mg tablet of Clonazepam, and that got the burning in check for now.

Yesterday I tried the Aleve 2 220mg (think they are?) tablets and Clonazepam, and that seemed to work decently, but I honestly believe the Tylenol with codeine works better than anything OTC wise (thankfully the pharmacy will liberally sell me tylenol with codeine... because it really does make a difference with this pain compared with regular tylenol).

If the burning pain returns yet again tomorrow... it will be Advil extra strength liquidgels and Clonazepam test.

When I had tylenol 3's paired with Clonazepam that totally kept things in check pain wise, but I know I can't be relying on that forever either.