Reply
 
Thread Tools Display Modes
Old 11-12-2006, 03:21 PM #1
bafriend bafriend is offline
Junior Member
 
Join Date: Sep 2006
Location: Maryland
Posts: 36
15 yr Member
bafriend bafriend is offline
Junior Member
 
Join Date: Sep 2006
Location: Maryland
Posts: 36
15 yr Member
Default

Sal, So sorry to hear about your problems and fears of living alone. I must admit, I'm really afraid of this too.

I'm even more afraid of progressing and having to live in a nursing home etc.

I've had a few bad falls lately which have gotten me thinking about safety issues and long term planning.

We are about to do a major renovation on our bathroom which will have a walk in shower with built in bench, hand shower, elevated commode, and about 10 decorative grab bars which can double for towel racks etc. Not cheap at all but something I really need. On days when my legs are tired and wobbly, I'm just scared to death of our old bathtub etc.

Last year we had the walkway to our house changed to a concrete type small ramp. No more having to walk up one big step with nothing to hold onto to get into the house.

I do not like this disease at all. However as we baby boomers age, there are more and more universal design options available for us to stay safe in our homes. I just wish there were more tax credits for these type of safety issues.

I highly recommend a lift chair for the many comfort and safety issues it can provide.

Best of luck to all as we cope with trying to remain independent. Betty
bafriend is offline   Reply With QuoteReply With Quote
Old 11-13-2006, 06:20 AM #2
Judy2's Avatar
Judy2 Judy2 is offline
Senior Member
 
Join Date: Sep 2006
Location: PA
Posts: 1,236
15 yr Member
Judy2 Judy2 is offline
Senior Member
Judy2's Avatar
 
Join Date: Sep 2006
Location: PA
Posts: 1,236
15 yr Member
Default

(((((Sally)))))
I can sooo relate. Living alone with a disability really is the pits. My townhome is on one floor except for the basement where I have a chairlift like you with a scooter downstairs. The basement is a walk-out to the patio and back yard so I need the scooter for that. However, here on the main floor, there is no way out with my powerchair. The front door has one step down to the porch and another to the ground. The garage is two steps down and lately I need someone to help bend my legs to get in the car and only drive into town, 1/2 mile.

After crawling around on the floor for an hour after a fall last year, I broke down and bought a Life Alert. Those commercials used to seem so funny -- "I've fallen and I can't get up!" -- until it happened to me. I wear mine as a bracelet instead of around my neck.

With the help of two friends who grocery shop, clean the house, do outside chores, etc., I'm still getting by. I do have to pay them though. Cherie's link for the groceries is interesting, have to check it out!! But I never go anywhere and only see my "kids" occasionally.

For me, the depression of isolation is becoming a battle, not really scared, just lonely. It's time for a different AD here. And yes, as others have mentioned, when we're feeling extra weak and fragile due to another physical problem like your teeth situation, it really throws us for a loop.

Thank goodness for this board and others for the "human contact" we all need. Sometimes I'm too weak and tired to post, but can at least read.

I know you'll make the right decision for yourself -- you're stronger than you think!! We can do this!!!!! Just wanted to add my support and love, knowing we're all in this "leaky boat" together!

Love and hugs!!!
__________________
_____________________________________________

.....Judy
SPMS -- FIBROMYALGIA -- Ouch! and Ouch!
.
Judy2 is offline   Reply With QuoteReply With Quote
Old 11-13-2006, 08:16 AM #3
cricket52's Avatar
cricket52 cricket52 is offline
Member
 
Join Date: Sep 2006
Location: Limboland in northern Ontario, Canada
Posts: 101
15 yr Member
cricket52 cricket52 is offline
Member
cricket52's Avatar
 
Join Date: Sep 2006
Location: Limboland in northern Ontario, Canada
Posts: 101
15 yr Member
Default

Sally:

It's hard being alone sometimes. Most of the time I like the peace and quiet when my daughter is in school.

This weekend I had to make a choice between going into hospital or staying home. I put my emergency care plan in place for my daughter and stayed home. It lasted less than 24 hours - my daughter came home because my husband couldn't get her to stop crying - she wanted to be with me. Her special services worker spent a couple of hours with her, my respite worker was away.

It was difficult to say the least. Every time I tried to lie down she would get anxious, she sense when something isn't right and her anxiety level goes up.

I just got her off to school, so I can lie down all day if I have to.

Living on one level in a 2 bedroom apt. has made my life much easier. I have a roomba to do my vacuuming. Unlike you though, I am mobile. That fall must have been frustrating and frightening.

I'm sorry you have to struggle so. You do well to manage alone.
cricket52 is offline   Reply With QuoteReply With Quote
Old 11-13-2006, 09:16 AM #4
SallyC's Avatar
SallyC SallyC is offline
In Remembrance
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
SallyC SallyC is offline
In Remembrance
SallyC's Avatar
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
Default

Yes (((((Judy))))), I knew you are alone too. Most of the time I like being alone. It's just those rare times, as you mentioned, that sometimes make it difficult. But hey, we're getting older and I'm a firm believer that the world owes us. I'm not about to give up all of which I've earned to give it to a nursing home. Not yet! Not ever, if I can help it.

My home sounds much like your townhouse, except I don't have to go outside to get to the basement. Let's you and I, and whoever else wants to join us, get a sprawling ranch, all on one floor, a pool in the back with a maid/cook and poolboy/chauffer, of course.

I guess you can tell...I'm feeling better today and I am so grateful to have friends such as you.

Love and Hugs,
__________________
~Love, Sally
.





"The best way out is always through". Robert Frost



~If The World Didn't Suck, We Would All Fall Off~
SallyC is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
HealthTalk Live!:Loneliness of Chronic Illness / Wednesday, November 8, 2006 GJZH Spinal Disorders & Back Pain 0 11-07-2006 07:05 PM
HealthTalk Live!:Loneliness of Chronic Illness /Wednesday, November 8, 2006 GJZH Chronic Pain 0 11-07-2006 07:02 PM
Live Discussion Today with Mary Felstiner on GJZH Spinal Disorders & Back Pain 0 10-12-2006 11:26 AM
Local couple live through Lou Gehrig's diagnosis BobbyB ALS News & Research 0 09-04-2006 09:08 PM


All times are GMT -5. The time now is 03:33 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.