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MRI results/being sent back to MS Clinis

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Old 11-18-2008, 11:17 AM #1
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Obviously, I cannot spell clinic!
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Old 11-18-2008, 12:12 PM #2
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Oh Barb, I'm so sorry about all of this. I can't even imagine what it would be like without my family. You do have us, your NT family! Sometimes I think, scratch that, I KNOW I get more MS and emotional support here. I just had an mri yesterday because I'm having more cog problems and the hand tremor is back. I'm probably relapsing even though I'm on Ty. Call me anytime!! I haven't researched any of the other drugs yet so I can't help you with that, but I'm here when you need to talk .
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Old 11-18-2008, 12:20 PM #3
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What about Hicy, like Keri and Chris did . . . have you researched that?

If it were me, I'd try LDN before I did anything more risky. If if works for you, it is a very easy solution.

Good luck in your research on your options, Barb. I know how it feels to be left with "no good options", especially when the disease appears to be worsening.

Cherie
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Old 11-18-2008, 12:23 PM #4
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I am also sorry Barb that you feel so alone. We are here to help you as you need it. I know it doesn't take the place of a physical person but just know we care and will do our best to help. I wish we were closer, I'd go with you.

My advice is to research each med as much as you can. Maybe start a thread or poll on each one and ask that members give their experiences?

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Last edited by SandyC; 11-18-2008 at 02:50 PM.
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Old 11-18-2008, 02:48 PM #5
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Sorry to hear about the increase in leison load. Hope your friend will go with you into the exam room for your appointment in January.

I also recommend research of the drugs and talking it over with the specialist - especially with all the wacky reactions you've had.

If you need anything, let me know.
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Old 11-18-2008, 03:03 PM #6
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I'm so sorry Barb. We are here for you. I don't know much about those treatments, but I hope you get one that works well without too many side effects.
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Old 11-18-2008, 06:38 PM #7
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Barb,
I dont have advice..other than research the drug ideas your dr mentioned..so you are well informed before the Jan. apt.

we are here anytime you know!! and we wuv ya...

wishing you luck with the choices, maybe start threads about each drug..and ask others to share the experience they have had on them....like someone here mentioned.

hugss and well wishes, sarah
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