My latest MRI results show 2 to 3 new lesions. I also had one new one last Spring. So I am up to about 9 lesions in my brain and at least one on my spine. None of them are currently showing active inflammation.

My neuro wants me on a treatment and since the CRAB's and ty have all been ruled out due to reactions, etc. He is pushing cytoxan, which scares me to death. He also mentioned novatrone and imuran. He does not want me in a trial because of the possibility of receiving a placebo treatment. He consulted with a MS specialist that I saw last Spring at Barnes Hospital in St. Louis and said that she agrees with his opinion. But he agreed that I could go see her or someone else for a second opinion.

So I have made an appointment for early January with her; it is the earliest I could get in. I feel so alone in this. I live alone, and I do not really have any family members that can help me make a decision. They all have their own lives and problems and do not live near me. I just want someone to tell me what to do. (Wouldn't that be nice?) I made the decision abut taking tysabri, and that obviously was not a success. At this point I am leaning toward imuran, but I am also going to ask her opinion of LDN. I also asked my neuro about trying copaxone again. The IPIR's did not kill me; they just made my life very unpleasant.

Sorry for the long post; I am just trying to work through this decision. I guess I should just try to focus on other things until my January appointment. A friend is going with me to the appointment, and I am going to ask her if she will sit in the exam room with me. She was with me when I got my diagnosis so I do not think she will mind.