Hi Peoples, I'm here. At least until my GKids get here.

Hi Gary, long time and Cherie, even longer. Nice to see you all. Gary, isn't is time to become a Gentleman Farmer now, or is it something about paying the bills? Darn Kids!

Hey Cherie, How have you been? The last I heard, you were still having trouble with your foot. Any Better? Darn 'Roids.

I'm good, just getting older and plumper, as we speak. Still vegging out on the LDN.

Lady E., Nancy T, Wannabe and Snoopy, I know I know you, but the holes in my brain tells me we may have to get re-aquainted. For the last couple of years I have been, mostly, on another board and away from BT. I'm back for good, if you'll have me.

I have to go greet my Grand Chillins now, but I'll be talking with you soon.

Hugs

Sally

In the 4(+/-) weeks since the last MRI of the foot and meeting with the ortho...I have not followed Dr's advice. I have used the foot more each day. I am walking without aids now and I am experiencing far less swelling and pain than when I was on crutches and in an AFO.

I am told the foot will never be "whole" or fully healed but after 12 months on crutches, it's time to live again.

Well that just proves it, doesn't it. We know our bodies and what they're capable of more than any old Doc. And that's a good thing.

I hope you continue to live your life as you wish..sans crutches and AFO.

Sally it's so good to know others have holes....except mine are the black kind

You may not know me - I used a different username on BT1....do you know how many versions of Snoopy there were But I use Snoopy on any other board I'm on.

Anyway, hope to get to know you and everyone better

WOW i was so happy and surprised to receive an email this morning with the link to here. Great seeing some familiar names.

wishing all the best.

marfla

Hey EPCOT buddy! How are you doing. Dave sends his best.

Hi Marfla, happy to see you here.

hiya cherie and sally and all

tell dave hi.

i am hanging in still working with many adjustments made.

finally found two neuros that are competent enough to at least recognize there is a neuro progressive problem. one is in St Pete and one locally. so i finally have neuro's to work with. both neuro's agree its either spinal cerebullar ataxia, or something very similar. or basically can say chronic degenerative progressive ataxia. I discussed with both neuros genetic testing but they agree with me, no reason as results won't change anything. i have no children so no reason testing for that purpose.

also a new PCP that is just as wonderful.

was referred to PT which I just finished Aug 29. it was more PT for maintaining what I have but really can't say it helped much. but at least i have excerises of stretching and some strength exercises i can continue doing here at home.

I am using two crutches or a wheeled walker all the time. plus rec'd AFO's in Aug and a new custom made pair just yesterday.

walking any distance is almost impossible due to ataxic gait, imbalance, weakness and bone pain etc....

still going to disney as often as possible using my personal Revo scooter.

have been considering a travel power chair just to use for those short trips like to malls, stores, public buildings for appts etc... as i find the Revo although great for the parks can be rather bulky in tighter spaces. but of course insurance won't cover anything as I don't need it in my home fulltime or to complete ADL's. grrrrr

Am going on a Disney Cruise in Jan 07, for 7 nights HOORAY!!!!!! Can't wait and so excited.

I keep going although some days I just want to stay in bed.

now if I can get Disney to use some of their Magic to have us skip Oct, Nov and Dec so its time for the cruise LOL

how are you both? and how is everyone else?

gentle hugs
marfla
orlando

Sounds like you and MSCraig (now UNDXCraig ) are going through similar. You two ought to be comparing notes. In fact, I haven't seen him here yet. I think he hangs out mostly at MSFoundation forums.

Enjoy your cruise. Hope you get some answers soon. This has gone on for far too long.

I've had a rough year but am doing well now.
Cherie