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Old 12-01-2008, 08:09 AM #1
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Originally Posted by Hola View Post
LOL, so true People have thought that Provigil offers super powers and expect wayyyyy too much on a daily basis. I came to the conclusion that I am just me and that people don't deserve any explanation at all .
I understand that. I hear this: "Oh really?!, MS?" as they look around for a missing wheelchair or walker...

At that point, I just walk away


Niko
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Old 12-01-2008, 08:52 AM #2
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There was an episode of Judge Judy once where a woman told her she was disabled and Judge Judy asked her what was wrong. When she said MS Judge Judy said "you look fine to me". Just shows how ignorant people (who think they know everything) can be. I've learned so much since being dx with this condition. I no longer make any comment at all regarding how they look or act when speaking to someone with a disability.....could be that they're having a "good day" (good for them!!) just like we all have sometimes.

Being disabled doesn't mean you withdraw from life...you just have more challenges.
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Old 12-01-2008, 04:38 PM #3
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and I love all these phrases with me being undx...

what do you mean you hurt all over..thought you said it wasnt fibro...
what do you mean you cant remember that, you run a McDonald's..

what do you mean you have a HC placard for van, when you are always working so fast on your feet at work...how could you ever need a HC card....

what do you mean, you cant pick up your own child...you did the other day...and running around with her...

etc etc...thanks I love threads like these...vent but having fun too..hugsss,sarah
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Old 12-01-2008, 05:53 PM #4
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Or there's the opposite like the friend I have who asks me every time I talk to him (which is daily) how I'm feeling and then I get a heavy sigh if I tell him the truth. Or he'll ask how my feet and legs are and whether or not I'm tired and then I get a heavy sigh if I tell him the truth. I can't lie to him or be generic because if I do or I am he asks pointed questions about my sx. So I've taken to sighing heavily when he asks. I just don't know how to combat that! Makes me feel like a really diseased person.


Isn't it fun being a member of a "club" where the general population gets to invent new ways to torture us with our disease process?
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Old 12-01-2008, 07:20 PM #5
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The Olhipie told me to say that people don't understand why one day he can be at the football game and the next at home not able to do anything but watch TV
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Old 12-01-2008, 07:22 PM #6
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In a way, I don't blame sincere people for being bewildered. I'm bewildered, too, and I LIVE in this disease. I really must sound like I can't keep my story straight.

Half of MS symptoms can be classified as "weird" anyway, and they appear, disappear and re-appear willy-nilly. I think I'd be confused at best, and maybe even suspicious, if the shoe were on the other foot.
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Old 12-01-2008, 07:31 PM #7
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Originally Posted by Blessings2You View Post
In a way, I don't blame sincere people for being bewildered. I'm bewildered, too, and I LIVE in this disease. I really must sound like I can't keep my story straight.

Half of MS symptoms can be classified as "weird" anyway, and they appear, disappear and re-appear willy-nilly. I think I'd be confused at best, and maybe even suspicious, if the shoe were on the other foot.
Yeah, and apparently some of our neuros are bewildered and can't keep it straight. LOL
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Old 12-01-2008, 09:19 PM #8
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Originally Posted by tkrik View Post
Yeah, and apparently some of our neuros are bewildered and can't keep it straight. LOL
Ain't that the truth..
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