Thank you ((((((((((( Everyone ))))))))))))) for responding. I'm sorry I haven't posted back yet....I'm having some difficulties in finding my words and saying exactly what I want to say. Also, life at home is crazed and confusilated at the moment...LOL.

I do appreciate all your thoughts and support. I still don't have my referral to the neuro yet. I should hear something today...if no word by 4pm I will call my pcp and find out what the hold up is.

I hate paperwork. I'm struggling to get my information into the hospital for financial help...it's depressing and frustrating to me and I'm really trying hard to fight with those emotions and just do it!

In the meantime, I'm still suffering with these symptoms that are driving me batty. The pins and needles are actually painful. Off balance most of the time and I feel like a weeble. Twitching and jerking seem to be the norm these days....very noticeable when sitting still. The left side of my body feels very heavy....seems to take such great effort to move and it tires me out so quickly. I really hate it

Welcome Seara....



I'm so sorry you're going through such a tough time. You've come to the right place for support as you go through this. I hope things will get better soon for you and that the paperwork won't be so bad.

I welcomed you in the welcome thread, but starting your own thread was a great idea. As you can see, it gets more responses.

I'm glad you are feeling more confident to post, now. We Understand what you are going through and are here to support you.

Be sure to visit the Stumble Inn and have a little fun..

Welcome to the Family..

Welcome testing is the pits! Doctors and specialists argh.

If you feel the need to hun, no shame in smashing your fingers on the keys and just letting it all out!

OH yeah, I hear you. Just went through the whole thing myself. Dx in 2005, sx started 2003, and got undx'd and redx'd just this year. All that testing..... grrrr....

It's embarrassing to have to ask for help, but you do it when you need it. I understand that too. I've been at the point of government cheese giveaways and WIC and only having $5 leftover from a paycheck with a small child. Survival is much more important than embarrassment. You'll get over the mind hump. Just close your eyes and make the leap forward. You are NOT a beggar!! That is why they HAVE those programs.

Hang in there, Seara. It's an ordeal and all you can do is ride the waves one at a time.

We got your back!

(((Seara))) Go ahead and fill the paperwork out. That is at least 1 thing you have control over at this point. The 1st time I went to our DES office to fill the paperwork out was really hard!!! I just didn't fit in. I had clean clothes on, not designer or dressy, but nice, my make-up and hair was done up well, wore jewelry, etc. I got lots of stares and glares as the only help it appeared I needed was to "stop drinking." LOL Seriously, I was falling all over and didn't have my cane yet.

However, DDs and I really did need the help. After I got approved, I was so relieved and that stress was taken off of me. Then, I was able to focus some on my health. It is OK to accept the help. I know, easy for me to say but I was where you are just a few short years ago - almost exactly 3. I wasn't even diagnosed yet. That came a few months later.

Over time, things will get easier and you have us to help you along the way.

Seara you have naught to worry about, the group of people here, they are supportive and caring and kind. We all were new at one time we all hesitated and we questioned ourselves, welcome to the group and jump on in, we don't bite, hang in there, with the MS bs it sucks and annoying, as are doctors and insurance companies. Keep a journal of info so its easier for you, and one step at a time, that is all you can do, try to do more and get frustrated and stressed and you end up annoying the MS