Thank you everyone so much for your comments and support. I finally got my referral this morning and I see the neuro on Jan 2nd. 8:00am. Now that will be a real treat getting out of the house by 7:30am LOL.

I have started keeping a journal, and the last time I went through this (7 years ago) I had written out a lifetime of issues to give to that neuro. He poo-pooed it as if it meant absolutely nothing. It took me a long time to write that out and I felt completely invalidated by him....the big jerk.

This new doc I'm going to is closer to home and is a woman as well. I think I like that idea of having a woman doctor. I hope and pray she is the kind that at least listens....ya know, sometimes all one needs is someone to listen and at the very least validate even if they can't tell you what's going on.

Neurontin.....great stuff. I was on it 7 years ago and it did help a lot. The calves of my legs were very very sore and tight....the neurontin really made it much easier for me to get around. I'm having somewhat of the same problem again with my legs. I was on all kinds of meds 7 years ago....within a year, I was off of everything. That's a story for another time. I have not taken anything since except for some ativan for occasional anxiety, once script of 20 pills usually lasts me a whole year.

I guess I will have to pull out my life story and add the last 7 years to it to bring to the neuro. I don't think we'll touch on everything...but it's helpful to have something to read from as I would never remember it all.

I've tried really hard to make myself think this was all in my head (yeah i know...MS is in your head and spine LOL) but in the mental health way. Oh it's just stress and anxiety. I'm looking for attention. It's not really happening, I'm making it all up. I've tried to ignore it and keep myself busy. (heck, I am busy) I'm not mentally ill. Suffering a bit of depression maybe....but nothing that is controlling my life and it's just bits now and again. I'm a pretty happy go lucky individual for the most part. Even with the stress of no insurance, I'm ok with that....I've always been of the belief that we get what we need. Nothing has changed thus far in that realm.

Ok, I'm rambling now LOL. Thanks again so much for all your words/posts/support and caring. I'm truly blessed.

seara

Oh I hear you, I don't do mornings well at all!

When I went for my IVSM (iv solumedrol for relapses) at 7:30am, I just pulled all nighters. I knew there was no way I was getting out of bed THAT early to go to the place lol.

That's awesome that you got a neurologist that quickly. Please keep us up to date on your progress.

I don't even know if I could ever pull and all nighter....that would be really hard for me right now (of course getting old doesn't help either LOL).

Yes, they did get me in for an appt pretty quickly. I was impressed. But at the same time, I know my doc was very concerned and she pushed for sooner rather than later. She's a good doc


seara

Hmmm....funny....I was actually feeling a bit better yesterday and first thing this morning as well. Now though, I feel sort of "out there" and my face is in pain again. Yesterday the tingling and tremors were pretty well gone, today they are back again. *sigh* I just don't know what to make of all this. I'm having difficulty finding my words again too.....

Awwwww, sorry, Seara.. Feel better soon..

Stinks doesn't it?

Some days I wake up, after a great night's sleep and think I can take on the world. Then about an hour later, bam. I'm hit hard out of the blue, and feel rotten with symptoms.

Some days though I get lucky and I remain symptom free

Waking up for me is a new adventure every day.

Seara - I'm sorry. It is so hard to predict what kind of day you are going to have. It gets frustrating. I used to be so dependable and now I am not. I can be fine when I wake up but within a few hours I am not fine. Or, I can wake up in complete spasms, pain, tremors, etc. and then am fine later on it the day.

I am glad you got the referral taken care and have an appointment with the neuro. Jan. 2 is not that far off. Hang in there! You're doing great.