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Old 12-14-2008, 06:07 PM #1
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Thats how it was explained to me too Kay. This is why its real important for the doc to know what is happening with your ms SX MEDS NEW OLD and keep a journal so you dont forget to mention these facts to the doctor. My doc explained to me how vital it was to keep him i the loop so he can if needed look back and look at now to make that decision, he agrees I seem to of slowed a bit, but is also worried cause I am hovering pretty close to SPMS DX, too many new SX stick around and are getting worse still with no Exasperation(sp?) couldnt they pick an easier word:SMACK:

hope your week goes well Deb
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CayoKay (12-14-2008), Debbie D (12-14-2008)
Old 12-14-2008, 10:32 PM #2
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Thanks so much, Kay and Frank...
So, I see the neuro on Tues. I'm trying to think of how to notate my sxs and such since he put me on IVSM and pred and Copaxone on 11/18...
do I notate how my sxs dissipated, and then came back once oral pred was discontinued? Do I notate the lumps/pain after injecting Copaxone?
Do I notate the new thigh pain/weakness? It's difficult to know what to notate. There's the old sxs returning now that the oral steroids are almost 2 wks gone, and also the emotional lability. I feel so confused as to what's going on in my body/mind, esp since I'm on meds for depression/neuropathic pain. So what is new? what is old and returning? how do I notate all of this? I sincerely don't want to seem like a hypochondriac...since I have spent months since March denying that the sxs are increasing...
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