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Old 12-28-2008, 01:01 PM #24
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Join Date: Aug 2006
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lady_express_44 lady_express_44 is offline
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Join Date: Aug 2006
Location: Vancouver, Canada
Posts: 3,300
15 yr Member
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Disability correlates with lesions when it comes to spinal lesions, but apparently spinal lesions don't seem to respond significantly to our treatment options anyway . . . There's not much we can do about that.

With brain lesions, however, studies show there is FAR less correlation between lesions to disability, and disability is all that really matters to me personally. Our brains can also reroute (spinal cords can't), and having dozens of lesions doesn't translate to disability, and/or vice-versa.

There is a TON of evidence to back (the above) simple statement . . . but that's a whole new conversation (for another day ).

My neuro see's no reason for me to have another MRI, because I remain disability stable every time I go in to see her (SO FAR!!!). If I started to go downhill, or advance in disability, she may change her mind on that . . . or she may just say "what did you expect this far down the track?"

I may have 400 lesions up there for all I know . . . but for me, the proof is in the pudding. I have had MS for 18 - 32 yrs, and I am still walking, talking, breathing . . . so why would I change what I am doing? I think that is true for anyone who is doing well on their treatment choice; if it ain't broke, don't fix it.

Cherie
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