That was one of the big reasons I quit the Amitriptyline that I was taking for insomnia, other than the fact that it quit working for me, was that I had increased numbness...which went away after I quit it. Mostly it was making me very weird. Went off it cold turkey and gosh, that was not fun.

Too bad I've got the numbness back, but I'm pretty sure that's due to the UTI I had last week, and possibly the mild dental infection that I had at the same time. (yay! the antibiotics I was taking for the UTI did a great job on the dental infection)

My left hand feels like I'm still wearing my winter gloves I just took off. At least it's not horrible right now, but it would be nice if it went away. It's not as annoying as numb legs tho...and I can still crochet and knit with numb/tingly fingers.

i have a lot of numbness in my feet. i've got neuropathic pain too.
i've taken neurontin, then switched to lyrica. it's still there but if i'm late with a dose i can tell the difference.

i hope you get to feeling better.

I pretty much agree with JMiller. I've had numbness on and off for years now. It's currently better (knock on wood-like surface) but it gets worse with heat or if I overdo it. The only way I'll take steroids is if I get a knock down, drag out flare up that affects my bladder, bowels, legs or eyes or something akin to that. (Can you tell I don't like them?)

I just ignore it but I also take it as a sign, since it always gets worse if I do too much or don't get enough sleep, etc...

I'm sorry you have to deal with this danged disease anyway.