Ya think?

Yes, you best get yourself to PT. I am going to make sure you do. I don't want Miss Twiffy to have to suffer like I am. If you don't do your exercises, what happens? Do it get worse, stay the same, or freeze up again? I am just learning all about this. I am totally overwhelmed. Sort of like when you first learn you have MS. :thud:


Shappy has been sending me all sorts of good stuff...information. Scary as hell. But good information!

How the heck did I get this is what I am trying to figure out! LOL!

Oh well...forward and be positive! That's the key right now!

Well? have you been to the PT? What is the plan for you?

I am in the process of rebuilding muscles, everything disappeared.

HUGSSSSSSS bit soft gentle hugsss, just got back to see what you have, never heard of it, hoping the meds, rest, pt and massage therapy is somewhat helping hun....sorry you are in sooo much pain!!

hey, my new neuro said to my mom, lets see what we can do to figure this girl out, and to help her sxs or maybe we will shoot her, then no sxs!! haha he has a humorous side I love him so far though. haha

hugss,sarah

Well, you are not going to be believe this. But then again with me, you all probably will as nothing with me is ever normal.

I WANT ONE NORMAL DAY IN MY LIFE, PLEASE, JUST ONE NORMAL DAY!!

The day started with an appt with my dermatologist. 6 month check up. He took a look at the spot in front of my right ear where I had a basal cell removed 2+ years ago and didn't like the looks of it so he biopsied it. It has been frozen off twice and excised once. He says if it comes back positive, I get to have MOHS. Great. Then he finds a new suspicious mole on my back. Great, another biopsy.

Then on to PT. Fill out paperwork, PT guy looks over my 4 MRIs, does a pretty thorough exam of my arm and hmmm...pretty hypersensitive, are we? Yep. Looks a little swollen. I also see quite a bit of atrophy. Doesn't really fit with FS or impingement. But let's see what kind of range of motion you have after we put some heat on it. Ok. Then he massaged it a bit and didn't really find any capsulation (or whatever) and didn't find the usual signs of impingement although he did feel an obvious muscle tightening -- non-movement at a point. My arm simply would not move beyond a certain point. 5 degrees forward, zero degrees away from my body, zero degrees up and zero degrees back. I have a long way to go!

Anyway, he is thinking RSD and is going to talk to the two docs that are treating me before I go back to see him on Thursday. Great.

Somethng else to research!

Oh man, FG! Saying prayers for you and hope they get to the bottom of this all. :hug::hug:

I know the feeling. It would be nice to just have good news and a positive diagnosis rather than another "wait and see" doctor visit.

For what it is worth, my arm did not move either. It WILL get better.

Since today is Wednesday, it means you have only 24 hours until you get a better answer.:)

RSD... does the arm swell and have skin color changes {red, blue, mottled}
hypersensitive to touch, even breezes or clothing ?

I was thinking it might be thoracic outlet syndrome with your heavy work and adding in computer uses.

both our RSD & TOS forums have a good amount of stickys to explore
Maybe shappy already mentioned those.:)

A couple of our TOS members did have frozen shoulder over the years..
I think the constant upper body spasms play a part there.

hope you can get a handle on it soon, or at least the pain reduced for now...

hugsssss sorry they added yet another thought about what it could be, ughhh

no fun to be told many things, just hoping they figure it out and do wahts best for that shoulder. good luck on the biopsies hugsssss

hugss and wishes to normal days, sarah

I have asked about TOS but all the docs have ruled it out. Doesn't fit.

RSD was brought up b/c of the hypersensitivity and the swelling. I've been asked about temperature changes but since I also have Reynaud's, it's a difficult question to answer. From what I've read, the temperature change only has to be a degree or two. I've always had mottled skin in my forearm but the neuro says that's due to MS and spinal involvement. (That was the clinical trial doc.)

Hypersensitivity also goes with MS when I am having an exacerbation so I just wrote it off to that, at least this last time. That's why I didn't think anything of it when I did the steroids. But when my arm got worse after 3 days of IVSM, it was obvious to me that what was wrong with my arm was not MS. But now it is hypersensitive ALL the time. And not just my arm, my shoulder, my pecks, my shoulder blade, my arm pit, my neck. :(

When the PT guy mentioned RSD yesterday, yes, I visited the RSD forum last night. Did a lot of reading. As with everything, some of the symptoms fit, but not all. But as the PT guy said, I am not presenting typical FS. I just laughed and said I don't present typical anything. The MS I have is not typical. Nothing I do is typical. He said it sounds like I am going to be a challenge. Ya think?

We had chinese food for dinner on Saturday night. I love fortune cookies. My fortune read "good ideas will spring forth naturally from your mind in this coming week." Since PODH doesn't like fortune cookies, I naturally opened the second one which read, "Tomorrow will be a five star day for you. Enjoy." That would have been Sunday. The Steelers won the Super Bowl! Yippee!! Something went right on Sunday!

Yep...and what a game it was..:eek::eek::eek: WhooHoo!!!

Sorry about the RSD..:( I want answers...and relief for your pain...dammit..:mad: