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-   -   Still Baffled by pain (https://www.neurotalk.org/multiple-sclerosis/67287-baffled-pain.html)

tovaxin_lab_rat 01-08-2009 02:19 AM

Quote:

Originally Posted by Natalie8 (Post 440792)
My DH will be glad to hear that it wasn't painful. Last week he found out he has 3 herniated disks in his neck -- he's been in terrible pain with a somewhat useless floppy hand (and a numb finger or two). I get to drive him as I think they also give some tranquilizers???

They didn't give me any but told me I couldn't drive. I was pretty woozy from the trauma...sort of like an LP. Just very tired. It felt like someone had been sitting on my back...someone heavy! Other than that, really no problem!

Tell him if I can get through it, he can. And I am a pain wuss....ask Gazelle!

:D

SandyC 01-08-2009 05:01 PM

That was posted at 1:19am. How are you feeling this afternoon Cheryl? :hug:

NurseNancy 01-08-2009 05:46 PM

cheryl, i'm glad you came thru it well.
i hope you con't to get relief. the relief may increase over the wks to come.
and you may get a bit of a steroid effect too.

no contrast, right?

tovaxin_lab_rat 01-08-2009 07:59 PM

I am doing better today. I got some sleep last night! YIPPEE!!! I can feel my fingers! And I can actually move my arm, a little bit, without pain!

I went to work today for a couple of hours, which was allowed, and was more than enough excitement for me! I came home and put some ice on the injection site as it is sore!

I still have some pain in my upper arm which the docs still don't know the cause. I have called my neuro to schedule it and they say APRIL! Ah...I don't think so.

I got the results of my Brain MRI today. Got Lesions? Yep. But they aren't glowing. And they aren't responsible for this problem in my arm. But I do have new ones.

The largest one is lying in the right parietal lobe and there are a few new and more intense 2-3 mm ones in the bifrontal FLAIR foci. It also says I still have MS. :rolleyes:

barb02 01-08-2009 08:25 PM

Sorry to hear about the new lesions. Are you considering any new treatment options? The MS specialist I saw yesterday told me that I still have MS. I guess they think that it might just disappear.

tovaxin_lab_rat 01-08-2009 08:58 PM

Quote:

Originally Posted by NurseNancy (Post 441276)
cheryl, i'm glad you came thru it well.
i hope you con't to get relief. the relief may increase over the wks to come.
and you may get a bit of a steroid effect too.

no contrast, right?

No contrast. He says that although he runs across many patients who "say" they have reactions to contrast dye, he sometimes uses it anyway b/c it isn't that much. I told him that is what almost cost me my life. I would appreciate it if he didn't use any b/c I am very sensitive.

He didn't use it.

Since I'd had the double GAD infiltration the day before, I think he felt sorry for he and wasn't going to take any chances!

He could see that I was really in a lot of pain and had these huge bruises on my arms from the IV problems the day before!

Anyway, I am feeling better, the pain is subsiding! YEAH! Now if they can only figure out what is causing the pain in my upper arm, I will be one happy camper!

:D

tovaxin_lab_rat 01-08-2009 09:03 PM

Quote:

Originally Posted by barb02 (Post 441389)
Sorry to hear about the new lesions. Are you considering any new treatment options? The MS specialist I saw yesterday told me that I still have MS. I guess they think that it might just disappear.

Just kills you doesn't it! :eek::rolleyes:

Not considering any new treatment. I've tried everything so far and nothing has worked. So, not sure where to go from here. I have an appt with my neuro sometime next month I think, I don't remember, but I guess we will discuss it then.

Been on Beta, Ty, Copaxone, and then the clinical trial, Tovaxin, so I guess I just have to figure out what's next on the agenda. I know I don't want to go back on an interferon. And had such a bad reaction to Copaxone so that's not an option. So...just wait and see at this point.

DM 01-08-2009 09:46 PM

Hey FG! Pain stinks, plain and simple. Hope the corisone continues to help. I had a cort inj in my hip last yr and it didn't help at all! I was so excited thinking the pain would go away and that darn shot HURT!!!! RATS~ :mad:

I'm usually not one to complain about needles, but when I get my Boniva infusions, they never seem to hit the vein until about the 3rd time. My arm is so bruised and bumpy. We could be the Blues Sisters. (Or Bruised Sisters)

Hope your visit w/the in laws goes well and you can get some rest. Take care of yourself. A well rested Cheryl is a healthier Cheryl. :hug:

tovaxin_lab_rat 01-08-2009 10:05 PM

Quote:

Originally Posted by DM (Post 441441)
Hey FG! Pain stinks, plain and simple. Hope the corisone continues to help. I had a cort inj in my hip last yr and it didn't help at all! I was so excited thinking the pain would go away and that darn shot HURT!!!! RATS~ :mad:

I'm usually not one to complain about needles, but when I get my Boniva infusions, they never seem to hit the vein until about the 3rd time. My arm is so bruised and bumpy. We could be the Blues Sisters. (Or Bruised Sisters)

Hope your visit w/the in laws goes well and you can get some rest. Take care of yourself. A well rested Cheryl is a healthier Cheryl. :hug:

Thanks DM. Yeah you are right about the cortisone shot. The shots hurt. Bruised is right!!

Here's hoping we both have a better year! :hug:

Momma's Kids 01-08-2009 10:14 PM

Yep...those cortisone shots hurt worse than any bee sting, but man do they work or what? I hope they find the cause soon, and don't over do with that shoulder just because it feels better...wouldn't want to send you to your room.lol

The last shot I had they injected inbetween the shoulder joint and arm...big oweeee, but it relieved the pain almost immediately.

Take care and feel better soon...:hug:


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