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-   -   Still Baffled by pain (https://www.neurotalk.org/multiple-sclerosis/67287-baffled-pain.html)

tovaxin_lab_rat 12-24-2008 01:05 PM

I guess we shall see when all the tests are done.

NurseNancy 12-24-2008 05:13 PM

gosh cheryl, i'm sorry you're going thru all this.
it sounds like your dr is on top of it all.
hang in there thru the tests. i hope they find out what's wrong.

somehow doesn't sound all neurological to me.
feel better soon.

prettypearlgirl 12-24-2008 06:58 PM

I know your pain sweetie and it plain sucks! Hope they can figure it out and get you relief pronto!!!

Carolyn:hug:

tovaxin_lab_rat 12-24-2008 09:59 PM

A little jaeger tonight and no more pain!! LOL!

Oh DM...where art thou!!!


:D

Taffy 12-24-2008 10:29 PM

We just have to have faith that the Docs will figure this out. (They just better hurry up!)

Okay..the Hawaii Kid is freak'n cold and ready to go back to 80 temps! We could not believe that it would keep dumping snow on us here.:mad: So lucky that he was able to get from San Fran to Eugene instead of Portland. With the one day break in the weather was able to drive down and pick him up. No planes...no trains...no buses...were moving...so felt very lucky that he had made it to that point.

Except...how can someone so smart........?:confused:

I told him it was snowing! (lmoa)

So...he had on sandals and had forgotten his shoes in Hawaii! Welp, sorry!:D

Hope you feel better our little Flygirl!

Momma's Kids 12-24-2008 10:48 PM

Just sending a :hug::hug: and hope tomorrow will be a better day.

Natalie8 12-25-2008 12:47 AM

Cheryl, sorry you are feeling so cruddy these days. If ice helps it's hard to believe it is MS related, right??? Hope you are feeling better soon! :hug:

Judy2 12-26-2008 01:27 AM

I'm so sorry to hear of your pain, Cheryl. I can certainly empathize with you from having pain 24/7 for many years. It does wear you down after awhile and becomes the main focus of your life. Bah humbug!!! Sure hope your docs can figure out the problem and bring you relief!!

Gentle hugs.........:)

mrsD 12-26-2008 12:46 PM

mysterious severe pain
 
like you describe can come from shingles.

And yes, they can go down the arm. That is where MINE came when I had them when I was in my mid 40's.

You do not have to have lesions, vesicles.

This can be tested for. A herpes zoster titre that is very high, would indicate this virus is active in the nerves.

Icing the roots in the neck may help. Also avoiding foods high in arginine may turn the virus off.
Over the years we had a PN patient with severe thoracic pain, and she listened to me, got the test, and ended up on Famvir. Pain gone!

If you have any Lidoderm patches, from the past, try them on the neck area, as well (over the roots).

Severe pain that does not show an organic cause on MRI or other testing, should be evaluated for zoster, IMO. It is often hidden.

Stress and consumption of high arginine foods is thought to
bring out an "attack" of shingles (and also herpes simplex in those infected with that)
http://www.globalherbalsupplies.com/...nformation.htm
Another test you can do yourself is to take about 2-3 grams of L-lysine to see if you can push the virus "back" into sleeping. Increasing L-lysine, lowers the arginine/lysine ratio, and often stops
attacks.
Arginine is what herpes uses to replicate, and it can bring on shingles pain.

It is just an idea, I think is worth exploring.
(If you have NOT had chicken pox in the past, the zoster pain is not likely--unless you
had a very mild case and did not recognize it as such).

Curious 12-26-2008 12:57 PM

did he rule out TOS?

so wassup with so many of us being one handed? creepy....really creppy says the one handed monkey.

:hug:


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