Reply
 
Thread Tools Display Modes
Old 01-07-2009, 11:46 PM #1
Natalie8's Avatar
Natalie8 Natalie8 is offline
Member
 
Join Date: Apr 2008
Posts: 900
15 yr Member
Natalie8 Natalie8 is offline
Member
Natalie8's Avatar
 
Join Date: Apr 2008
Posts: 900
15 yr Member
Default

Quote:
Originally Posted by Av8rgirl View Post


I must say the procedure was painless. And I seem to be doing a whole lot better. I can feel my index finger! Very tired and my back is a little sore, but otherwise, doing very well.

My DH will be glad to hear that it wasn't painful. Last week he found out he has 3 herniated disks in his neck -- he's been in terrible pain with a somewhat useless floppy hand (and a numb finger or two). I get to drive him as I think they also give some tranquilizers???
__________________
On Tysabri and love it.
.
Natalie8 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
tovaxin_lab_rat (01-08-2009)
Old 01-08-2009, 02:19 AM #2
tovaxin_lab_rat's Avatar
tovaxin_lab_rat tovaxin_lab_rat is offline
Elder
 
Join Date: May 2007
Posts: 7,009
15 yr Member
tovaxin_lab_rat tovaxin_lab_rat is offline
Elder
tovaxin_lab_rat's Avatar
 
Join Date: May 2007
Posts: 7,009
15 yr Member
Default

Quote:
Originally Posted by Natalie8 View Post
My DH will be glad to hear that it wasn't painful. Last week he found out he has 3 herniated disks in his neck -- he's been in terrible pain with a somewhat useless floppy hand (and a numb finger or two). I get to drive him as I think they also give some tranquilizers???
They didn't give me any but told me I couldn't drive. I was pretty woozy from the trauma...sort of like an LP. Just very tired. It felt like someone had been sitting on my back...someone heavy! Other than that, really no problem!

Tell him if I can get through it, he can. And I am a pain wuss....ask Gazelle!

__________________
Cheryl
Dx: MS 2001 CRPS 2009




“When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford
tovaxin_lab_rat is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Natalie8 (01-09-2009), SandyC (01-08-2009)
Old 01-08-2009, 05:01 PM #3
SandyC's Avatar
SandyC SandyC is offline
Wise Elder
 
Join Date: Jan 2008
Location: Somewhere over the rainbow
Posts: 9,227
15 yr Member
SandyC SandyC is offline
Wise Elder
SandyC's Avatar
 
Join Date: Jan 2008
Location: Somewhere over the rainbow
Posts: 9,227
15 yr Member
Default

That was posted at 1:19am. How are you feeling this afternoon Cheryl?
__________________
. . A woman is like a tea bag. You never know how strong she is until she's in hot water. Eleanor Roosevelt
SandyC is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
tovaxin_lab_rat (01-08-2009)
Old 01-08-2009, 05:46 PM #4
NurseNancy's Avatar
NurseNancy NurseNancy is offline
Grand Magnate
 
Join Date: May 2007
Location: Florida
Posts: 4,240
15 yr Member
NurseNancy NurseNancy is offline
Grand Magnate
NurseNancy's Avatar
 
Join Date: May 2007
Location: Florida
Posts: 4,240
15 yr Member
Default

cheryl, i'm glad you came thru it well.
i hope you con't to get relief. the relief may increase over the wks to come.
and you may get a bit of a steroid effect too.

no contrast, right?
__________________
Judy
trying to be New Skinny Butt
______________________
You are a child of the universe, no less than the trees and the stars; you have a right to be here.
And whether or not it is clear to you, no doubt the universe is unfolding as it should.
--------------------------------------
"DESIDERATA" by Max Ehrmann
NurseNancy is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
tovaxin_lab_rat (01-08-2009)
Old 01-08-2009, 07:59 PM #5
tovaxin_lab_rat's Avatar
tovaxin_lab_rat tovaxin_lab_rat is offline
Elder
 
Join Date: May 2007
Posts: 7,009
15 yr Member
tovaxin_lab_rat tovaxin_lab_rat is offline
Elder
tovaxin_lab_rat's Avatar
 
Join Date: May 2007
Posts: 7,009
15 yr Member
Default

I am doing better today. I got some sleep last night! YIPPEE!!! I can feel my fingers! And I can actually move my arm, a little bit, without pain!

I went to work today for a couple of hours, which was allowed, and was more than enough excitement for me! I came home and put some ice on the injection site as it is sore!

I still have some pain in my upper arm which the docs still don't know the cause. I have called my neuro to schedule it and they say APRIL! Ah...I don't think so.

I got the results of my Brain MRI today. Got Lesions? Yep. But they aren't glowing. And they aren't responsible for this problem in my arm. But I do have new ones.

The largest one is lying in the right parietal lobe and there are a few new and more intense 2-3 mm ones in the bifrontal FLAIR foci. It also says I still have MS.
__________________
Cheryl
Dx: MS 2001 CRPS 2009




“When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford
tovaxin_lab_rat is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
barb02 (01-08-2009), Natalie8 (01-09-2009), SallyC (01-08-2009)
Old 01-08-2009, 08:25 PM #6
barb02's Avatar
barb02 barb02 is offline
Grand Magnate
 
Join Date: Jan 2008
Location: Illinois
Posts: 3,836
15 yr Member
barb02 barb02 is offline
Grand Magnate
barb02's Avatar
 
Join Date: Jan 2008
Location: Illinois
Posts: 3,836
15 yr Member
Default

Sorry to hear about the new lesions. Are you considering any new treatment options? The MS specialist I saw yesterday told me that I still have MS. I guess they think that it might just disappear.
barb02 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
SallyC (01-08-2009), tovaxin_lab_rat (01-08-2009)
Old 01-08-2009, 09:03 PM #7
tovaxin_lab_rat's Avatar
tovaxin_lab_rat tovaxin_lab_rat is offline
Elder
 
Join Date: May 2007
Posts: 7,009
15 yr Member
tovaxin_lab_rat tovaxin_lab_rat is offline
Elder
tovaxin_lab_rat's Avatar
 
Join Date: May 2007
Posts: 7,009
15 yr Member
Default

Quote:
Originally Posted by barb02 View Post
Sorry to hear about the new lesions. Are you considering any new treatment options? The MS specialist I saw yesterday told me that I still have MS. I guess they think that it might just disappear.
Just kills you doesn't it!

Not considering any new treatment. I've tried everything so far and nothing has worked. So, not sure where to go from here. I have an appt with my neuro sometime next month I think, I don't remember, but I guess we will discuss it then.

Been on Beta, Ty, Copaxone, and then the clinical trial, Tovaxin, so I guess I just have to figure out what's next on the agenda. I know I don't want to go back on an interferon. And had such a bad reaction to Copaxone so that's not an option. So...just wait and see at this point.
__________________
Cheryl
Dx: MS 2001 CRPS 2009




“When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford
tovaxin_lab_rat is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
barb02 (01-08-2009), Natalie8 (01-09-2009), SandyC (01-13-2009)
Old 01-08-2009, 10:16 PM #8
lady_express_44's Avatar
lady_express_44 lady_express_44 is offline
Grand Magnate
 
Join Date: Aug 2006
Location: Vancouver, Canada
Posts: 3,300
15 yr Member
lady_express_44 lady_express_44 is offline
Grand Magnate
lady_express_44's Avatar
 
Join Date: Aug 2006
Location: Vancouver, Canada
Posts: 3,300
15 yr Member
Default

Quote:
Originally Posted by Av8rgirl View Post
I got the results of my Brain MRI today. Got Lesions? Yep. But they aren't glowing. And they aren't responsible for this problem in my arm. But I do have new ones.

The largest one is lying in the right parietal lobe and there are a few new and more intense 2-3 mm ones in the bifrontal FLAIR foci. It also says I still have MS.
Have they ever attempted to explain why it is that you get new lesions, but they are never enhanced when you have a MRI?

Cherie
__________________
I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
.
lady_express_44 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
tovaxin_lab_rat (01-08-2009)
Old 01-08-2009, 10:41 PM #9
tovaxin_lab_rat's Avatar
tovaxin_lab_rat tovaxin_lab_rat is offline
Elder
 
Join Date: May 2007
Posts: 7,009
15 yr Member
tovaxin_lab_rat tovaxin_lab_rat is offline
Elder
tovaxin_lab_rat's Avatar
 
Join Date: May 2007
Posts: 7,009
15 yr Member
Default

I have had them enhance before. The second MRI I had when I was dx'd I had 3 lesions enhance. Neuro did an LP, confirmed the dx and confirmed the flair. I started IVSM and joined this exclusive club!

I am not having an exacerbation now.
__________________
Cheryl
Dx: MS 2001 CRPS 2009




“When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford
tovaxin_lab_rat is offline   Reply With QuoteReply With Quote
Old 01-08-2009, 08:58 PM #10
tovaxin_lab_rat's Avatar
tovaxin_lab_rat tovaxin_lab_rat is offline
Elder
 
Join Date: May 2007
Posts: 7,009
15 yr Member
tovaxin_lab_rat tovaxin_lab_rat is offline
Elder
tovaxin_lab_rat's Avatar
 
Join Date: May 2007
Posts: 7,009
15 yr Member
Default

Quote:
Originally Posted by NurseNancy View Post
cheryl, i'm glad you came thru it well.
i hope you con't to get relief. the relief may increase over the wks to come.
and you may get a bit of a steroid effect too.

no contrast, right?
No contrast. He says that although he runs across many patients who "say" they have reactions to contrast dye, he sometimes uses it anyway b/c it isn't that much. I told him that is what almost cost me my life. I would appreciate it if he didn't use any b/c I am very sensitive.

He didn't use it.

Since I'd had the double GAD infiltration the day before, I think he felt sorry for he and wasn't going to take any chances!

He could see that I was really in a lot of pain and had these huge bruises on my arms from the IV problems the day before!

Anyway, I am feeling better, the pain is subsiding! YEAH! Now if they can only figure out what is causing the pain in my upper arm, I will be one happy camper!

__________________
Cheryl
Dx: MS 2001 CRPS 2009




“When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford
tovaxin_lab_rat is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
barb02 (01-08-2009), Natalie8 (01-09-2009)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
hi..we've baffled our doctors jinadean73 New Member Introductions 9 02-22-2008 10:50 AM
Pain Numeric Rating Scale May Be Only Moderately Accurate for Pain Screening CME/CE GJZH Chronic Pain 0 10-02-2007 08:23 PM
Pain Numeric Rating Scale May Be Only Moderately Accurate for Pain Screening CME/CE GJZH Spinal Disorders & Back Pain 0 10-02-2007 08:22 PM
Gene Variation affects pain sensitivity and risk of chronic pain - NIH press release fmichael Reflex Sympathetic Dystrophy (RSD and CRPS) 2 10-26-2006 06:35 PM
Gene Variation affects pain sensitivity and risk of chronic pain - NIH press release fmichael Chronic Pain 0 10-26-2006 03:35 PM


All times are GMT -5. The time now is 11:03 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.