So cool to know I'm not alone in this. There are some days the joking and comments can roll off my back, and there are other days where it feels like a knife in the heart.

My family was here for the holiday, and one of the days I had to move slowly because I was pushing a little too hard. I told them I wasn't having that great of a day. My stepmom said, "you're looking so good, you'd hardly know". That hurt. I knew she meant it as a compliment and supposed encouragement, so I didn't call her out on it. My dad did roll his eyes for me though.

Right there with you Wiz!! I was going to reply sooner, but just didn't have the energy. It seems lately that the fatigue is much worse, maybe the holidays and just the "thoughts" of what should be done? Sometimes it's like I'm sleeping my life away. The best part of that is the pain isn't felt as much then.

Ali, I'd never heard that fatigue and anger are associated in the brain. Makes sense though. The frustration of not being able to do things "like we used to" really pushes my buttons. Anger that ends up in a puddle of tears. You're a special young lady, Ali, to be able to deal with all of this.......no matter what anyone thinks!!!!

Think I hear my recliner calling............