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#1 | |||
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Junior Member
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Yep, Friday morning....8am is my appt with the neuro. This should be interesting....I'm anxious to see if she is just as invalidating as the last neuro I had *sigh*. I'm praying not!!!
I was able to find all my paperwork on my test results from 2002, from bloodwork to MRI's to evoked potentials and EEG and lumbar puncture. During the last stint of testing, I had sat down and written out things that had happened during my teens and adulthood that separately, meant basically nothing, but when looked at together over the years, could very well have been preludes to an MS dx. The last neuro wouldn't even look at what I had written. ![]() So, yep, I got it all together now, in a nice neat package and will hand it all to the new neuro in the morning. I'm really nervous about this. I keep thinking it's all in my head (yeah I know I know, but you know what I mean LOL). I keep telling myself I'm just lazy and looking for an excuse to not go to work, looking for an excuse to not having a life, looking for an excuse to feel sorry for myself. I told a good friend the other day how I was thinking in that regard. She pretty much raised her voice and said..."Now wait a minute, you, of all people NEVER complain about illness. You push yourself and push yourself and you never cease to amaze me what you accomplish when I know damned well you are hurting!". Now, while hearing this from my dear friend is very validating and wonderful and I love her so much for saying that, I still can't keep this fear at bay that I'm being stupid and silly and lazy. I don't want to have MS, but dang it, if I have it, I want to be treated NOW...not another 7 years from now when things may be so bad there is no hope at all. Am I looking at this the wrong way?? Heck, I'm not getting any dang younger here....I'm going to be 53 soon. I have 2 new grandbabies on the way this year....I have to be able to be there for my grandbabies and their parents...damn damn damn. ![]() ![]() ![]() seara |
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#2 | ||
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Member
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Just wanted to wish you luck,Seara. Hang in there.
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#3 | |||
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Member
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I know you want an answer, and I hope you get one soon. However, I know people that have gone for years and still do not have answers to what is happening. If you don't get an answer, just remember it is not the end of the line. You still will be the same as you were yesterday and today, getting a dx, even an incorrect one, will not change you.
Good luck tomorrow and I will keep you in my thoughts...and sending you bunches of 'Momma' hugs... ![]() ![]() ![]() |
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#4 | |||
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Magnate
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It's a new year, and hopefully this will bring you new answers and closure seara.
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__________________
2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
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#5 | |||
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Magnate
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I wish you the very best of luck with you appointment today Seara and I hope you get some much needed relief and answers! You will be in my thoughts and please keep us updated when you can!
__________________
To the World you may be one person, but to one person, you may be the World. |
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#6 | |||
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Grand Magnate
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My fingers, toes, eyes, etc crossed for you today! I hope you get ~ not an answer ~ but the correct answer..
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#7 | |||
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Junior Member
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You folks are so awesome!
So this morning I'm off for my MRI. Whooopie! Friday morning I go for the results...it's going to be a long week. Good thing I have my daughters' baby shower to plan and get ready for. She's due in February with her first child...a boy ![]() This is way too early on a Sunday morning to be up and going for an MRI............................................... off to get dressed and out the door. Hope everyone has a wonderful Sunday! ![]() seara |
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"Thanks for this!" says: | dmplaura (01-05-2009) |
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#8 | |||
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Magnate
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Congratulations
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__________________
Mair . |
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"Thanks for this!" says: | seara (01-04-2009) |
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#9 | |||
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Junior Member
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Well, I guess I won't be bothering you wonderful folks with anything more. The results I received today from the bad neuro doc.....what a meanie, show that it is not MS. Lesions are not in the right place of the brain to be considered MS.
So, I'm released from her care...thank goodness as she was the most invalidating, insulting doctor I've ever had the displeasure of meeting. She refused to listen to me about anything...insinuated that my weight played a role and that I needed to get off my lazy **** and excercise. Little did she know (because she wouldn't have listened anyways) that no matter what my weight has every been....I've ALWAYS been active. Screw you doc.....I'm considering writing a letter to the president of the hospital complaining about your bedside manner and "close to illegal" comments you made to me today. You had your mind made up last week at our first visit....and I was doomed from that point on. Screw YOU! ![]() ![]() ![]() seara PS. Sorry for the rant.....like I said, I shan't bother ya'll wonderful folks anymore with my whinging. Thank you from the bottom of my heart (contrary to the doctors belief, I do have one) for all the kindness, caring and support you have shown me. Ya'll rock and my wishes for each one of you is that you live well, feel well, and know that you all matter! ![]() |
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#10 | |||
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Magnate
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Seara, don't go away.
![]() ![]() In the beginning, the doctors I went to wouldn't believe me. You know something is wrong, right? You know your body, they don't. Don't give up, and please don't go away. ![]() ![]()
__________________
Mair . |
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"Thanks for this!" says: | seara (01-11-2009) |
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