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Old 01-04-2009, 12:53 PM #1
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I had to give it a couple weeks after I'd finished up the steroids before I began to feel better again. Hang in there!
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2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
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Old 01-04-2009, 05:34 PM #2
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I almost smacked someone in the church parking lot Frank because she was taking too long to get out. I'm tapering on regular prednisone, 200 mg for 4 days, I'm only on day 2 , then decrease it by 10 every day until I'm done.

This week was very long and I’m so tired, physically and emotionally. It's been so hard for me to accept that I have MS.

When a second neurologist reviewed my records and MRIs , I had an episode of S.O.D (Sudden Onset of Denial). For about 45 seconds, I wondered if she was going to tell me I did not have MS after all and that it was all one really massive medical mistake. I pictured the ensuing court case, the insurance settlement, maybe being on Judge Judy, and the awkwardness of telling everyone, "Just kidding! I don’t have MS...I have an inner ear problem!"

I'm just feeling a bit overwhelmed by it all at the moment, not whining. I think there's a difference, I hope so. I'm proud of myself though for reaching out, that's so so hard for me to do.
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