We must have been separated at birth! I, too, have always been stubborn, independent, not wanting to ask for help for fear of sounding too whiney...Fortunately, I come from a family of stubborn Norweigans who are even MORE stubborn than I ...
MS has me, too..I slap it around a little, but it has me. I hope you and your neuro can work out a treatment that will treat you more kindly (and above all work!).
I'd never been much for online forums either, until I was dx'd with MS. I think you'll really like it. It's a safe place to talk about what's up with you, you're life, MS, etc..Such a relief to be able to talk to someone about this stuff...And you'll never find a greater bunch of people!
Just hold on..You're not alone!

Hope the next DMD treats ya better.

Can totally relate to what you posted. I'm a "creatively independant" (aka stubborn ) person, and I often feel like I'm whining. But here, everyone understands the ups and downs of this wacky thing.

Totally hate the phrase "MS doesn't have me". It's more along the line of "learning to still live life despite it".

Hang in there, and we're here if you need support or if you need to vent.

Sorry you are having such a rough time. I totally understand how you feel about trying to find the right treatment. I went through copaxone, betaserson, and tysabri all in one year. Hope you find the right treatment for you.

Eeek, as if a recent diagnosis isn't enough to deal with, that Copaxone reaction you had sounds incredibly scary. I'd have freaked out. I'm glad you made it through ok and got off of it. Don't take it as a defeat. Perhaps the Interferons will work wonderfully for you.

Aaahhh.."Creatively Independent"..I like it, Finlady! I must replace the word "stubborn" with it now..

hi thumper,

i'm really sorry that you're having such a hard time right now.
i think part of being independent is giving yourself permission to ask for help.

i hope each day will bring some improvement.
glad to have you here.

Thumper, hang in there. I've been lucky. I've been on Copaxone since dx in 8/05 and have no reactions to that, but have gone through a lot of meds to tx my major symptom-pain. Just when you think something works....Anyway, my mantra is adjust and adapt. It doesn't mean giving in to MS but it helps with the rollercoaster ride of MS. I'm glad you found us here. Hang in there and don't be afraid to post. I'm fairly new this site and had never posted in a forum before. There are some wonderful people here at NT. Hope you feel better soon. Hugs and doxie kisses

((((((((((Thumper))))))))))


Could I have some of thoses Doxie Kisses, DoxieM?

All I know is these steroids has me looking like the Stay-Puffed Marshmallow Man (except I’m a woman). I am so swollen that the skin on my face is peeling and my shoes have all shrunk in my closet! So if you have the pleasure of seeing me in Marshmallow mode feel free to bring along the graham crackers and Hershey bars and we'll just make S'mores together.

mmm now I have a craving for s'mores - thanks for that.

I usually look like a big, red, angry tomato My face gets so red and fat and I get really, really mean. Luckily the puffiness should go away relatively quickly after you stop the meds.