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Old 01-04-2009, 12:53 PM #1
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I had to give it a couple weeks after I'd finished up the steroids before I began to feel better again. Hang in there!
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Old 01-04-2009, 05:34 PM #2
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I almost smacked someone in the church parking lot Frank because she was taking too long to get out. I'm tapering on regular prednisone, 200 mg for 4 days, I'm only on day 2 , then decrease it by 10 every day until I'm done.

This week was very long and I’m so tired, physically and emotionally. It's been so hard for me to accept that I have MS.

When a second neurologist reviewed my records and MRIs , I had an episode of S.O.D (Sudden Onset of Denial). For about 45 seconds, I wondered if she was going to tell me I did not have MS after all and that it was all one really massive medical mistake. I pictured the ensuing court case, the insurance settlement, maybe being on Judge Judy, and the awkwardness of telling everyone, "Just kidding! I don’t have MS...I have an inner ear problem!"

I'm just feeling a bit overwhelmed by it all at the moment, not whining. I think there's a difference, I hope so. I'm proud of myself though for reaching out, that's so so hard for me to do.
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Old 01-05-2009, 10:34 AM #3
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Welcome to NT, Thumper. Good luck with the steroids. Some do well on them, others do so-so, and others just take a while to get used to them. Hopefully you won't have to do them very often.

Some docs don't believe in oral taper and some patients (like me) refuse to do the oral taper! I sleep a lot with the solumedrol so can't relate to the non-sleep issue but know that a lot of others do. It does, however, take a few days or up to a couple of weeks for it to work. So hang in there.

Stay positive (I know it's difficult) and you've got a lot of support here. Even if we are mostly a bunch of loonies!
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Old 01-05-2009, 11:26 AM #4
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Hi Thumper... I haven't been on for several days, but saw your thread when I got on at work today. I can so relate. It can be really difficult to just wrap your brain around the idea of having this disease. The only thing that has kept me from completely losing it is having the perspective of others going through the same thing.

I started into a relapse right before Thanksgiving and I'm on the last 5 days of oral pred right now. It was an interesting holiday season. Thankfully I have a very patient and understanding husband.

I hope you start feeling better soon... and I believe you will. I remember with my first attack I thought that I would never improve. But I did... eventually, it took time. So here I am, 3rd relapse since my dx 2 1/2 years ago frustrated that I'm not feeling better quicker. Patience was never something I had an abundance of.

to you!
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