I am sorry that I did not introduce myself in my previous post. I have had MS for 20+ years and am in a wheelchair 24/7, but my most troubling symptom is the nerve pain in my left arm. I have been on numerous medications and have been to 3 pain management specialists and still the pain persists.
My friend has suggested that I explore Dr. Garvey's treatments in Florida. I am wondering if anyone has heard/seen him. Any response would be appreciated.

Georgia

Welcome to NeuroTalk, Pretz....Happy to have you here..

I don't happen to suffer from chronic MS nerve pain, but many here do and may be able to answer your question. I have had nerve pain, so I know it sucks bigtime.

Come on in and settle in with your new Family.....we are all here for each other..

Welcome to NT Pretzel!

Hi Georgia,
Welcome to NT. I have permanent nerve pain from MS, and also from getting hit in the rear of a car I was riding in. We were stopped at a red light many years ago. Lower back pain.

I have tried every legal drug I was prescribed for pain, used machines at PT and exercise. I also had deep massages, heat and sound waves, shots and the TENS machine. Sometimes, you get lucky and find something that works. I haven't. I just try to ignore it so my mind doesn't concentrate on it all day. Trust me this is not just a headache in intensity, it is a 6 to 10 on the scale of pain or sometimes I say 20+.

Ever find when you are real busy with activities or major thoughts, or involved in a good book or movie that the pain is less? If you can divert your mind to other things, pleasant memories, etc., it might help. The more I think of my pain, the more it intensifies. I think they call it, mind over matter.

I am sorry you are experiencing this pain. I have not heard of the treatment doctor who mentioned. I hope you find relief. Do you have an electric chair or a manual? Is the arm pain/damage related to use? Arm pain could originate in the shoulder or neck too.
Lady

I just wanted to welcome you, Georgia. I wish I knew of something that would be helpful to your pain,but sadly,I don't. I do hope you feel better soon.

Welcome to NT. I suffer from neuropathic pain and have tried lyrica with horrid side effects. Doc has suggested neurontin.

Thus far, when I have a flare, IV solumedrol it works to lessen it!

Georgia: I have wicked nerve pain. It feels like fire under my skin. I heard someone describe it as acid on the skin. Mine not that bad, but it is enough to disturb your peace. It is a delicate balance. I am still working and am really trying not to file for disability, however between the pain and fatigue I am wondering how long I can maintain. After trying Neurotin and Naproxen, I started taking Tramadol. It is a mild narcotic, but I only take 100mg in the morning to get to work. I then use 600 mg of Ibuprofen two more times during the day and evening. I have found that keeps it at bay so I can work. Mine is bad in the morning. I find that it subsides if I rest. Give yourself as much as you can. You cannot run at the same speed you used to. The Tramadol is supposed to be addictive, but I have not had a problem. Try that regiment. I also go for Steriod infusions once a month and that has really helped. I am researching White willow bark, however I think I will be careful with that and the Tramadol and Solumedrol. Take care. I completely understand.

Georgia!

I did a quick google on "Dr. Garvey, Florida, nerve pain" and couldn't find anything. Can you explain what his approach is?

I suffered two years with severe nerve pain, until I got on Low Dose Naltrexone. Antidepressants seemed to help a little too, but I dropped those completely once I got on LDN.

Cherie

Hi Georgia, welcome to NeuroTalk. This is a great place to hang out. There are some very nice, friendly, and helpful people here.

hi georgia,

welcome to NT. glad you found us.
i'm not familiar with what you're talking about so can't help, sorry.

i've got a lot of neuropathic pain in my feet and take lyrica. that helps.

i hope others may be able to help you.
hope to hear more of your posts.