thank you mon Cherie, the thing that stuck out for me was before i was DXed, they ran all those other test lupus crohns diabetes and a number of others, my thought is why is there such a discrepancy in how one is tested? I spent 7 yrs going back and forth to er and over night stays at hospital,to be told I had this I dont have this, its in my head.....but that last time I had a headache so bad, they had to keep looking and found the MS, there are procedures for almost every medical thing they do, yet this isnt the first time I have heard something like this. you think there would be some universal order of test prior to releasing an MS dx, just to rule out the other things, yeah i know cost and time issues blah blah blah, if you are that sick I dont think cost should be a concern, and yes I am in medical debt till 2090, just seems that b4 you tell someone they have some incurable illness, they should have all their ducks in a row first

True on the ducks in a row quack quack, too bad they cant figure out my ducks uggggggggg, wow..interesting article... thanks for sharing, sarah

Hey Cherie~ as usual you have provided something really interesting here. There has been an article in the papers here and for No IL that anyone who has a firm MS DX, to please contact a certain #, as they feel the incidence in my county to as far as Sandy, Jim, Wiz, Frank and Deb have an unusual # of MS DX's.

So, this article you posted was truly interesting and I thank you for taking the time to post it for everyone.

The message I got from this article was that you get the right diagnosis if you do it the right way.

I think that even this 99% figure is overly pessimistic. I do not think that there are many folks with lesions in the right places, the right symptom history, and a positive spinal tap results and abnormal evoked potential results walking the face of the Earth with Misdiagnosed MS.

jackD

exactly Jack nero the neuro told me this too about the MRI's, some can be hidden deeper and not be seen, he says the MRI is a good tool, but is just a tool. I understand the illness mimics so many other situations, so that does add to the troubles of being DXed, just wish they had a sure shot type of test,

The potential ramifications of this are mind-boggling, not only for people in the Spokane area, but for those who will experience the ripple effect.

Thanks for posting this, Cherie.

I couldn't determine if I had chills or shock when reading it. Definitely sadness. I cannot even begin to fathom how someone would feel to hear that they no longer had MS - or rather, that they never had it. Of course, as the neuro states in the article, none of this changes the person's actual physical health. Though, in the case of that one woman, when she stopped copaxone, she felt better. No word though, however, how her health truly is now - and if she is just "better" all around.

It all just reminded me of when I went to Hopkins last June. When the doctor first walked in the room and asked me what he could do for me - my response was "Tell me that I don't have MS" - to which he responded that I did, in fact, have MS.

I was diagnosed solely from one physical exam and MRI results....all done the day I met with the neurologist for the first time - which was all within two weeks of noticing any symptoms. When I started learning about MS (within a day of the diagnosis), I learned that this was more uncommon and was always worried and questioned this - why didn't I have any of the myriad of tests out there? I think I always silently thought that it must be a mistake...and that one day I would wake up and this nightmare would be over.

One year and a few days later, I'm still waiting for that day...

~Keri

I have a question of sorts... I have had constant headaches since I was 17. They came on suddenly after I had laser eye surgery. I was assured they were not related to the surgery.

The last time I was hospitalized for my ms my headaches were so bad I wished they would just put me out of my misery. I was told by neuro that ms does NOT cause headaches. Told by another neuro that ms CAN cause headaches.

So which is it... and how do you know????? Do you, Frank, or anyone, have any feedback on this?

Thanks.

nero the neuro told me the same and then in same breath said if its a spinal lesion they can cause those ON attacks and or the severe headache

I've never had a spinal MRI. I was just curious what you dr had said. It would be nice if they all had the same (correct) info.

My headaches have been such a mystery for over 30 years. Each doctor I went to would say something different. Meanwhile I still have them. But they do seem to get much worse when my ms symptoms are acting up.

Thanks.